I thought I would update everyone as to how Nicholas is doing. His 
heart is great and the surgeon seems pleased with the first phase of 
his surgery. The problem that we continue to face now is that of his 
breathing. He can't breathe well at all without the CPAP machine. 
They attempted to take him off it on Wednesday and after a few hours 
he was really struggling so back on the CPAP machine he went.

They are going to give him a week and then try to take him off it 
again. If at that time he is still not able to hold his own they will 
have to put him on a ventilator and scope him to see if there is 
another underlying issue. Worst case scenarios would be lung disease 
or a tracheotomy.. Please I am asking everyone to pray that God heals 
Nicholas and allows his breathing to become normal.

He already has so many hills ahead of him to climb that I really pray 
he doesn't need to suffer with more procedures.

I want to thank everyone who continues to pray for him and also for 
Scott and I. I have had some really down days lately and thank God 
Scott was here this week because he is my rock but sometimes I feel 
really overwhelmed. I would ask that you pray for our strength to 
increase because to load at times seems too much to bear. It is also 
going to be hard with Scott going back to work next week. If you 
could pass this along to all prayer chains and prayer warriors that 
would be great! Again thank you to all!

Jackie, Scott and Nicholas
[email protected]

My heart belongs to Nicholas Scott, HLHS angel who arrived 2/27/09!!!!!


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