"Love Really Can Make Suffering Bearable": Woman with Spina Bifida 
Grapples with the Answer to "Unbearable Suffering"

<http://www.lifesitenews.com/ldn/2009/jun/09060506.html>http://www.lifesitenews.com/ldn/2009/jun/09060506.html
 


By Kathleen Gilbert

LANSDOWNE, Virginia, June 5, 2009 (LifeSiteNews.com) - Amid the 
euthanasia and assisted suicide debate, the objection is frequently 
raised: what about those who suffer what can truly be called 
"unbearable pain"?

Although euthanasia advocates often mount a compelling "right to die" 
argument for such cases, two U.K. activists intimately familiar with 
the depth of physical suffering strongly deny that assisted suicide 
and euthanasia provide an acceptable answer to pain. Instead, they 
say, a society that considers suicide a legitimate option deprives 
sufferers of the support they need the most, and implicitly shuns the 
power of love to overcome suffering.

[]
Colin Harte, director of the U.K. anti-euthanasia group ALERT, 
addressed the question of suffering head-on at the Second 
International Symposium on Euthanasia and Assisted Suicide at the 
National Conference Center in Lansdowne, VA last weekend. The 
symposium was hosted by Canada's <http://www.epcc.ca/>Euthanasia 
Prevention Coalition. Harte is the full-time caretaker of Alison 
Davis, the leader of the disability rights group No Less Human, who 
is disabled.

Davis herself spoke first at the symposium, and battled the growing 
notion that people with profound disabilities - and even those with 
"unbearable pain" - are "better off dead."

Davis has suffered all her life from spina bifida, hydrocephalus, 
emphysema, and multiple other disabilities that have confined her 
permanently to a wheelchair and cause immense suffering. Frequent 
doses of morphine, she said, only somewhat alleviate her pain. "I 
think it's important for us to know that some pain can't be relieved. 
That's the case for me," she said. "When the pain's at its worst, I 
can't move, I can't think, I can't speak. Doctors have told me that 
it will definitely get worse."

Davis said that about twenty years ago, when doctors assured her she 
didn't have long to live, she developed a "settled wish" to die that 
lasted for ten years. She attempted to kill herself several times. 
However, she said she regained her desire to live after a 1995 trip 
to India where she met disabled children whom she had sponsored, and 
whom she began to love "overwhelmingly and fiercely." Davis later set 
up <http://www.enable-india.org.uk/>Enable (Working in India), a 
charity for disabled Indian children.

"Had euthanasia or assisted suicide been legal then, and I'd been 
killed," said Davis, "I would have missed what actually have been the 
best years of my life, and nobody would ever have known."

Davis says that people often assume that because she is in a 
wheelchair, she is in favor of euthanasia. However, she said, 
openness to such an option is not what individuals who are disabled 
and in pain really need.

"In my experience, when the pain is bad, what I need is not to be 
told I'm burdensome and it's my choice whether I want to live or die, 
and that perhaps I would be better off dead," said Davis. "What I 
need is to be surrounded by people who tell me, yes, my life does 
have value, and I'm not burdensome ... they can't take the pain away, 
but sometimes it's not the pain that hurts the most, it's the fear of 
being abandoned."

Davis' full-time assistant, Colin Harte, criticized the deep fear of 
both experiencing and witnessing suffering that he says is behind the 
euthanasia movement. "In many people's minds, the whole of the debate 
about euthanasia is fixated on the question of suffering," said Harte.

While advanced palliative care usually means the elimination of 
severe pain, he said sometimes, as in Davis' case, the question of 
suffering must be faced head-on.

In examining the modern reaction to "unbearable" suffering, Harte 
questioned why prisoners of Nazi concentration camps rarely committed 
suicide - although, he noted, firsthand accounts attest that "the 
thought of suicide was entertained by nearly everyone in the camps, 
if only for a brief time."

"Suicide was, in fact, an easy option," said Harte. "Yet in spite of 
contemplating suicide, very, very few went through with it. Why 
should this be?" Harte concluded that the main deterrent was the 
"solidarity in suffering" and "mutual sense of encouragement" among 
prisoners who collectively rejected suicide as a viable option. Amid 
such encouragement, he said, a "natural human resilience" emerges in 
spite of great suffering.

However, said Harte, "once suicide is considered a legitimate option, 
those words of hope lose their power - because death itself is seen 
as a means of liberation, the means of satisfaction. Death is 
regarded as the source of hope."

If assisted suicide had been legal while Alison had given up on life, 
said Harte, "it would have made my job absolutely impossible." "I 
would have been regarded as being cruel to her to encourage her to 
live," he said. "Once you have a law allowing the so-called 
'compassionate choice' to die, if you want to emphasize another 
option which is going to involve suffering, you are suddenly becoming 
the person who is not compassionate, who is inflicting suffering."

"We live in a ... world today where those who give up the fight are 
called tenacious, and those who abandon their use of free will by 
killing themselves somehow achieve an independence. It's madness!" 
said Harte. "We should be able to say plainly: it's mad. It's absurd."

Contrary to the typical assumption, said Harte, death is not the only 
means of overcoming unstoppable pain: while Davis' physical pain did 
not improve after her visit to India, and in many ways has become 
"much worse," Harte said the children had "provided a particularly 
powerful motivation for her to persevere."   "And that motivation has 
another name, a simple name: love," he said.

Harte quoted Holocaust survivor and psychoanalyst Victor Frankl, who 
said that, amid his suffering: "I grasped the meaning of the greatest 
secret that human poetry and human thought and belief have to impart: 
The salvation of man is through love and in love. ... In a position 
of utter desolation, when a man cannot express himself in positive 
action, when his only achievement may consist in enduring his 
sufferings in the right way - an honorable way - in such a position 
man can, through loving contemplation of the image he carries of his 
beloved, achieve fulfillment."

"That profound insight that resulted from Frankl's own intense 
suffering, which in all probability would not have been realized 
without that suffering," said Harte. "Love really can, and does make 
suffering bearable."

"Even though committed euthanasia advocates may deride the idea that 
there can be any point in suffering, many people would like to be 
convinced of its value, said Harte. "They would love to be convinced 
of its value. And I think we alone can show them this value."

Related Links:

<http://www.enable-india.org.uk/>Enabled (Working in India)

<http://www.epcc.ca/>Euthanasia Prevention Coalition

To order DVDs of the Second International Symposium, contact the 
Euthanasia Prevention Coalition at: <mailto:[email protected]>[email protected]

See related LifeSiteNews.com coverage:

<http://www.lifesitenews.com/ldn/2009/jun/09060306.html>"Obsessional" 
Fear of Suffering Ushering in Euthanasia Culture: Prominent Bioethicist

<http://www.lifesitenews.com/ldn/2009/jun/09060204.html>Experts at 
International Euthanasia Symposium Stress Unity, Strategy, and the 
Triumph of Love over Suffering

<http://www.lifesitenews.com/ldn/2009/jun/09060109.html>"The Weekend 
Cleanup": The Gruesome Aftermath of Legalized Euthanasia in Belgium



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