If you look at those studies that reported up to a 43% misdiagnosis,
those occured within the first few months after the diagnosis, NOT
after 15 years.

Moreover the studies that reported suchy a high rate were from the
early 90's and late 80's. Since then the definitions have been
tightened up considerably. Additionally there are new diagnostic tools
such as SMART, 
(http://www.ingentaconnect.com/search/expand?pub=infobike://tandf/tbin/2000/00000014/00000004/art00002),
that have vastly improved diagnosis.

larry


On Mon, 21 Mar 2005 11:11:27 -0700, Dana <[EMAIL PROTECTED]> wrote:
> do you have a link to anything about this --
> 
> Moreover the imaging that has been done has shown irretrievable damage
> to areas such as the cerebral cortex and the corpus callosum to such
> an extent that only the lower maintenance functions within the brain
> are left. In other words the higher levels of the brain (the cerebral
> cortext and the mammalian brain) are atrophied or destroyed, leaving
> the reptilian brain that controls breathing and other functions. In
> other words what is left is a breathing corpse. Nothing of what made
> Terri Shiavo is left.
> 
> I am quite willing to believe that there is such a thing as PVS and it
> is irreversible. What I am concerned about is that 43% rate of
> misdiagnosis.
> 
> Dana
> 
> On Mon, 21 Mar 2005 13:04:50 -0500, Larry C. Lyons
> <[EMAIL PROTECTED]> wrote:
> > Are these people trained neurologists? What I read is impressionistic
> > non-medical reports. CNA's are not trained in diagnosis. Moreover
> > every diagnostic criteria I've read cautions the clinician not to
> > interpret, but rather report on the actual behaviors. The propaganda
> > you've reported on is pure interpretation
> > --
> > http://bmj.bmjjournals.com/cgi/content/full/319/7213/841
> >
> > Observation versus interpretation
> > When obtaining evidence from other observers or from written material,
> > it is vital that the examiner distinguishes clearly between observed
> > behaviour and interpretation of the behaviour. Thus, family or staff
> > should be asked directly what behaviour was actually observed. The
> > examiner may then ask for their interpretations, which may show
> > further observational evidence. However, interpretations made by
> > observers may well be biased and the assessor should make her or his
> > own interpretation.
> > --
> >
> > I've found in working in neuro rehab, that the CNA's are nothing more
> > than glorified cleaners and feeders. The training they receive in
> > medical diagnosis, and neuological assessment is nill. In other words
> > their testimony is worthless from a medical diagnostic point of view.
> >
> > Moreover the imaging that has been done has shown irretrievable damage
> > to areas such as the cerebral cortex and the corpus callosum to such
> > an extent that only the lower maintenance functions within the brain
> > are left. In other words the higher levels of the brain (the cerebral
> > cortext and the mammalian brain) are atrophied or destroyed, leaving
> > the reptilian brain that controls breathing and other functions. In
> > other words what is left is a breathing corpse. Nothing of what made
> > Terri Shiavo is left.
> >
> > here are relevant articles from various journals I've found that discuss 
> > PVS:
> > http://jnnp.bmjjournals.com/cgi/content/full/73/4/355
> > http://bmj.bmjjournals.com/cgi/content/full/319/7213/841
> > http://bmj.bmjjournals.com/cgi/content/full/321/7255/196
> > http://bmj.bmjjournals.com/cgi/content/full/321/7255/196
> > http://pmj.bmjjournals.com/cgi/content/full/75/884/321
> > http://neurology.org/cgi/content/abstract/58/3/349
> > http://archinte.ama-assn.org/cgi/content/abstract/151/5/930
> >
> > http://scholar.google.com/scholar?as_q=&num=100&btnG=Search+Scholar&as_epq=Persistent+Vegetative+State&as_oq=&as_eq=&as_occt=any&as_sauthors=&as_publication=&as_ylo=1995&as_yhi=2006&hl=en&lr=&safe=off
> >
> > larry
> >
> > On Mon, 21 Mar 2005 09:38:52 -0800, Sam <[EMAIL PROTECTED]> wrote:
> > > Does this help at all? It's an affidavit from last year.
> > >
> > > http://www.hospicepatients.org/heidi-law-09-03-affidavit-re-terri-schiavo-michael.html
> > >
> > > At least three times during any shift where I took care of Terri, I
> > > made sure to give Terri a wet washcloth filled with ice chips, to keep
> > > her mouth moistened. I personally saw her swallow the ice water and
> > > never saw her gag.
> > > "[Another CNA] and I frequently put orange juice or apple juice in her
> > > washcloth to give her something nice to taste, which made her happy.
> > > On three or four occasions I personally fed Terri small mouthfuls of
> > > Jello, which she was able to swallow and enjoyed immensely."
> > >
> > > 15. During the time I cared for Terri, she formed words.  I have heard
> > > her say "mommy" from time to time,  and "momma," and she also said
> > > "help me" a number of times.  She would frequently make noises like
> > > she was trying to talk.  Other staff members talked about her
> > > verbalizations.
> > >
> > >
> > > On Mon, 21 Mar 2005 11:44:59 -0500, Bill Wheatley wrote:
> > > > Nah none of what he called her matters. Dana points out he has not
> > > > acted as her husband for a long time and that somehow equates that to
> > > > being a reason for him lose his rights as her guardian.
> > > >
> > > > 1) It does not matter, the piece of paper is still the piece of paper
> > > > and no matter how you behave until you're divorced it is still the way
> > > > it is. If i died today my wife would still be able to decide what
> > > > happens to my body even though we haven't seen each other in 3 years.
> > > > 2) If i was in his position i don't think i could sit by her bed alone
> > > > the whole time i was going through it. I would probably find someone
> > > > else too. And i can see how i might get resentful over time at all the
> > > > stuff thats going on and say something out of anger.
> > > >
> > > > And I don't know if a feeding tube falls under HEROIC EFFORT either.
> > > > But it should go along with a DNR if you don't want to be hooked up to
> > > > any machines then you shouldn't be hooked up. I can't imagine how
> > > > horrible a way to die starving is but until our country allows
> > > > physican assisted suicide its the only way possible (Being removed
> > > > from machines keeping you alive). And myself personally i would not
> > > > want to be like that. I would want to given a lethal dose of morphine
> > > > or precluding that i would want to be disconnected from the machines.
> > > > Be it a feeding machine or a ventilator. I mean people including my gf
> > > > have said its a horrible way to die and I would say dieing itself is
> > > > horrible and i have come close to drowning before so i know how sucky
> > > > it must be to have your ventilator pulled and not be able to breath.
> > > > Sure you die faster but is it a less painful death? Nobody can say.
> > > >
> > > > Just because they are her parents does not make them right. And just
> > > > because the hubby has made some mistakes doesn't mean he did not know
> > > > her wishes.
> > > >
> > > > But what shouldn't be happening is the federal government jumping into
> > > > a case that has been upheld all the way to the FL supreme court. The
> > > > US Supreme court would not hear the case maybe because it is such a
> > > > firestorm but maybe because they think there was no need and that the
> > > > merits spoke for themselves.
> > > >
> > > > I think this is the point bluntly:
> > > > We as humans should be able to do whatever we want with our bodies.
> > > > It's not the f'ing govt's business. It is certainly not these
> > > > buttheads business who keep jumping in and protesting because somehow
> > > > in their heads they draw a parallel to abortion. It really should be
> > > > private. So it is really the case of 2 parents who can't accept the
> > > > fact that their little girl is gone. And even above that they can't
> > > > respect her ADULT wishes of never wanting that to happen to her.
> > > >
> > > > BTW guys if i ever die and for some reason my living will was not
> > > > executed (because the govt started second guessing us to if we really
> > > > meant it) please point them to this thread so they can see i want to
> > > > have my plug pulled if i can't speak for myself. *shrugs*
> > > >
> > > > Sucky case and its sucky that the republicans are taking this on
> > > > because they think the democrats have a weak case. And also because
> > > > they want to screw with bill nelson. Anyone who plays politics with
> > > > this shit should be shot. Any republican any democrat whoever tries to
> > > > use this crap as a political goldmine needs to be drug out on their
> > > > ass.
> > > >
> > > > But that's not what will happen people who believe its murder etc etc
> > > > will rally around the republicans and say YES they are fighting for
> > > > this poor innocent woman. That is horsecrap, they don't give a flying
> > > > feather about her, especially since she can't vote :>.
> > > >
> > > > I have a prediction where this will go. The us govt tries to step its
> > > > nose into peoples lives too far the supreme court will get involved
> > > > and overrule the law for whatever reason and she will die. EVENTUALLY
> > > > but she will die. Maybe the republicans will even go for a
> > > > consitutional amendment if it gets overruled.
> > > >
> > >
> > >
> >
> >
> 
> 

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