Hi Cheryl,

Can you please send me a copy by email of any info/protocols on 
this?  I'd like to discuss with my doc.

Thanks,
Christine



--- In [EMAIL PROTECTED], "Cheryl-Anne Simoneau" 
<[EMAIL PROTECTED]> wrote:
> Hello Folks,
>  
> Last June I sent a message to this group as per a request from my
> Canadian Dr, Dr. Pierre Laneuville-McGill to provide some details 
on the
> Quantitative PCR testing initiative being funded by Novartis.
> Unfortunately it coincided with a "private" launch of a 
qualitative PCR
> testing program and the information I was trying to relay to 
Canadians
> on the list got lost in some sort of shuffle. A few people have 
written
> to me privately asking for information, most of which was given in 
my
> original two posts back in June.  Apparently people are trying to 
call
> Novartis to get information on the program, and that is not 
necessary.
> If you would like to make sure that you get Quantitative testing 
on your
> PB and you are not going to one of the centres listed below, you 
can
> have your doctor contact the centre.  There is no charge to you or 
your
> hospital for this.  But like everything else if you do not ask for 
it,
> you might not get it�
>  
> Dr. Laneuville chaired a session at the Canadian Bone Marrow 
meeting in
> June, which included Dr. Lipton from the Princess Margaret 
hospital.
> Here is the summary of my posts from June 3rd and June 10th:
>  
> Suzan McNamara and I will be meeting with Novartis shortly so if 
you
> have any questions, please contact me directly.
>  
> I have just returned from my monthly check up with my Dr. here in
> Montreal, Dr. Pierre Laneuville; he is up to date on this program. 
As
> promised last week, here is an update on the Canadian PCR
> Standardization Program.  
> The idea of the program is to try and capture as much information 
as
> possible.  There are 6 centres in Canada that can offer standardize
> quantitative PCR test to any patient in Canada.  The sensitivity 
of the
> test is to 100,000.   
>  
> The six centres are:
>  
> L'Enfant Jesus in Quebec City
> H�pital Maisonneuve Rosemont � Montreal
> Notre Dame � CHUM � Montreal
> Royal Vic � MUHC � Montreal
> Princess Margaret Hospital � Toronto
> Vancouver General � Vancouver
>  
> If you do not get tested at one of these centres, you can request 
to
> have your PCR sample sent to the nearest centre � free of charge.  
I
> think it is a good idea to start tracking this data.  Hopefully 
you can
> ask your doctors about having your samples sent to the test 
centres �
> more is better!  From what I understand this data is also being 
tracked
> in Italy and I hear Germany will also start tracking the data in 
the
> very near future.
>  
> Each of these centres are supposed to be strictly adhering to the
> standards, meaning that one sample would yield the same test 
result if
> it were tested at each of the six centres.  
>  
> Please do not hesitate to contact me if you require additional
> information, I will do my best to get an answer for you.



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