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I couldn't agree more, Rob. My doc friends
here told me some time ago that the "cure from transplant was somewhat
misleading", as most transplant patients were only followed for a period of ten
years, which was considered a time period denoting cure. What happened
after that was anyone's guess, as statistical data was sketchy.
With the apparent success of new drug trials I
don't think a real "cure" in terms of addressing the actual cause on a deeper
level and getting rid of those pesky quiescent cells is really that far
off.
I have had some side effects from Gleevec such as
rashes some peripheral edema but nothing I can't deal with. I also gained
32 pounds from the time I was diagnosed. I also am pretty foggy
mentally but I am unsure if it is Gleevec or side effects of depression. I
rather think it is the depression. I have been able to drop all 32 pounds
plus 2 more using a low carbohydrate diet and moderate exercise. I am of
the opinion that if one can force oneself to eat a bit less and control the fat
storing process, then one can lose the weight associated with CML unless it is
water retention due to cortical steroids or something of that nature. In
my discussions with Doctor Druker, he opined that CML often causes
depression and that needs to treated as aggressively as acid refulx or heartburn
etc. He put me on Prevacid and recommended I talk to a shrink for the
depression. I did and still do and take Wellbutrin and it seems to be
working pretty well.
Thanks again for a great forum.
Fred
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