Dear Gloria
I had a transplant in 1993 and was given Bulsafan then, I was under the impression full body radiation was only necessary if there were other factors other than just cml to consider, like complications within the diagnosis. I was not given specific do's and dont's when I went home, but was careful to make it very clear to friends that I was frail and immune supressed. Make sure your friends and family understand that even simple infections and viruses they have may be very dangerous to you. I also employed someone to clean my room each day and did not share my bathroom with anyone. I was in the fortunate position of having 2 bathrooms, so my husband and 4 children did not use my toilet facilities at all. I also avoided closed in spaces like theatres and shopping malls. As for diet, there were no definite no's. I had simple bland foods to not uppset my stomach, as I suffered from ongoing nausea. Things like poached eggs and lots of
vegetable soups. I found walking very useful to help gain strength. May I also encourage you to keep a diary. It seemed at first that I would never gain my strength back, but I found writing down what I could manage each day helped to remind me after some weeks just what progress I was making. It may seem like you will never feel strong again, but gradually your strength and endurance returns. I returned to full time work as a teacher after a year and must say that there was very little I could not do that I did before the transplant. One thing I found very useful was meditation. I actually went to a therapist here in Melbourne who took me through some relaxations exercises. At times when things got on top of me I used these exercises to regain control. There are many good books on mediation which you can read. It really helps to keep control of your mind, and not it take control of you. I wish you all the best as you
begin this incredible journey. Be positive, do not doubt the reasons for this decision and now put all your strength into reaching a positive outcome. My thoughts and prayers are with you Gloria.
Judy Telford Melbourne Australia
Gloria <[EMAIL PROTECTED]> wrote:
Gloria <[EMAIL PROTECTED]> wrote:
I'm curious why they're only giving me IV chemotherapy and not
radiation? I'm getting Bulsafan, Ara C and Cytoxin. I've read
other bmt'ers journals and they received radiation? Am I getting the
right protocol?
Any feedback on this?
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