I would also like to thank Cheryl-Anne for allowing me to tag along
and glean everything that I could from ASH. For those of you who
haven't met Cheryl-Anne, she is a truly great person. Very
intelligent, warm and down to earth. With her drive, motivation and
interest in CML we are truly fortunate to have her on this list. We
had a great time attending the various sessions, digesting the
information and then collaborating on some of the posts. Who would
have thought that having a serious disease could be so much fun?
I was also very pleased to meet Rob and Kelly Harless (finally!).
Rob and Kelly are local to me here in San Diego and we have much in
common. For example, both Rob and I were misdiagnosed because our
G.P.'s didn't do a simple CBC. By the time we were both dx'ed, I was
at 332,000 WBC and Rob was around 400,000. Most of you probably know
that Rob had the dreaded T315I mutation and underwent a successful
SCT two years ago. I can attest that he looks great and is doing
well although it was quite a battle. Kelly is a great caregiver and
I was thoroughly impressed by her knowledge of CML and the ins-and-
outs of SCT.
I was also pleased to meet Virginia and Van Garner who were
introduced to me by Cheryl-Anne. Virginia is a long time CML
sufferer who looks great and is doing well. She is being treated by
Dr. Sawyers. I don't think Virgnia would mind me saying that one of
the touching stories at ASH was that Dr. Sawyers (who was pretty much
the man of the hour for his BMS presentations) looked specifically
for Virginia at one of the sessions. He walked right past all of his
esteemed colleagues and sat down next to her. How cool is that?
I've also been amazed at how well informed my fellow CML'ers are.
I've never seen a disease like this where the patients seem to be so
well informed. Rob has done a great job hosting this list and it has
obviously paid off for the listmembers that I have had the pleasure
to meet.
All the best,
Mark
--- In [EMAIL PROTECTED], "cher111376" <[EMAIL PROTECTED]> wrote:
>
> Hello All,
>
> I attended the last sessions at ASH yesterday morning which were
> about the molecular mechanisms of the disease and looking at
> possible other targets to possibly "cure" CML. I took lots of
notes
> and in the next few days I'll post them to this list.
>
> Mark had "time off for good behavior ;>)" yesterday morning!
> However we did meet up after the sessions and he took me on a tour
> of Old Town San Diego. I had changed my flight to the dreaded "red-
> eye" flight home because I didn't want to miss yesterday mornings
> sessions, so we had more time in the afternoon. As a really
special
> treat, Mark took me up to Palomar to see the 200 inch Hale
> Telescope. I don't think Mark will mind if I tell you one of his
> hobbies is Astronomy and it is something that I have dabbled in
over
> the years, so it was very kind of him to take me to one of his
> favorite places. The coolest thing is that there was snow up in
> Palomar, and it was a very chilly 36 degrees. So, the first bit of
> snow that I have seen this year was in California!
>
> After visiting the telescope I met Mark's family, his lovely wife
> Diane and their wonderful son "king" Sean. Their son is practicing
> for a Christmas pageant and he is playing the part of a king, so
> during our walk around Old Town, Mark found the perfect crown for
> Sean to wear. It was an awesome shinny gold crown with lots of
> jewels and Sean was very happy. Afterwards we went out to dinner
> and then it was time for me to go to the airport.
>
> I am still quite excited about the chance to have been at ASH and
> will spend a good deal of time reviewing my notes and posting them
> to you.
>
> Thank you all very much for the nice words of appreciation. It has
> meant a great deal to me to be able to share my experience with you
> and to know that in some small way I might have been helpful to
some
> of you. Meeting Mark and his family, Virginia and Van Garner and
> Rob, Kelly and Robbie Glatts was all so exciting for me.
>
> Collaborating with Mark on the posts was lots of fun, and I'll look
> forward to hearing your input Mark, I enjoy your keen enthusiasm
and
> intelligent insight for this "tricky" disease.
>
> Best wishes for the brightest and best holiday season ever and
> peace, light and good health for us all in the New Year.
>
> Love,
> Cheryl
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