YAHOOO!!! YIPPEEE!!! Number 770 in the Zero Club Zavie
-----Original Message----- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: December 8, 2004 8:53 PM To: [EMAIL PROTECTED] Subject: Re: Re: [CML] Marque(long) > I read these posts and do sometimes respond to them. It is so scary when you hear of someone dying and do feel as is you somehow personally know them. I am at zero and am considered in remission. I was dxed in March and just got the good news. But I have to admit I can NOT shake the feeling the medicine will quit working in only a matter of time. I dont know why but it is sometimes a daily thought which I hate. I try to live day by day, but I always wonder when.... I am so sorry for the loss and I am sure all were better for the knowing. j > From: Adrienne Davis <[EMAIL PROTECTED]> > Date: 2004/11/30 Tue AM 08:16:47 EST > To: [EMAIL PROTECTED] > Subject: Re: [CML] Marque(long) > > Thank you for this post. > > Adrienne > > rgebauer2001 <[EMAIL PROTECTED]> wrote: > > I have rarely posted to the group, but I am a constant visitor, and > usually find a very inspirational story when I do. > > For those old timers on the list, I am the author of "My 10 Favorite > Things About Interferon" posted a few years ago. > > Every now and then we are all saddened by news such as Marque's > passing. I thought it would be appropriate to share my story as a > counterpoint to this loss, and to help renew the faith for those who > let a little doubt creep into their thoughts when we lose a member of > the group. > > I recently celebrated my six year anniversary since diagnosis. I was > diagnosed when I went to an eye specialist complaining of blurry > vision. This was two days after I had a complete physical for > insurance purposes, and all my tests were normal, including blood > counts. Needless to say, I was shocked to find out I had CML after > receiving a "clean bill of health". Obviously, I caught my disease > very early on, in fact you could speculate that I was diagnosed a day > after my symtoms manifested. By the way, the blurry vision > dissapeared immediately after I was diagnosed. A sign perhaps? In any > event, I threw myself totally into researching the disease and into > looking for treatment. Eventually, I went on the Interferon/Ara C > regimin, which did absolutely nothing except make me miserable(see 10 > favorite things about Interferon). During this fun time I stumbled > upon Dr. Drucker's trial, and sent him an email. He responded within > an hour, and three weeks later I was in the trial. I am in one of the > very first groups. Anyway, in six months I was in total remission(or > barely detectible, if you prefer) measured every conceivable way. I > go to Portland every six months and have a BMB once a year. Blood > tests every six weeks. > > During these trips, and tests are the only times I think about my > medical challenge. I know I am blessed, and totally believe that in > my case, the "challenge" came into my life because I had to make some > serious changes in my life. I now give CML very little time, and I > feel terrific, but, I > constantly work on the things I did that let the disease become part > of my reality in the first place. That's a whole other story. > > Marques passing is a tragic loss, but it is not harbinger of anything > for the rest of us. It is instead a reminder that life is ever > precious, and > should be treasured, above all else, for everyone on or off our list. > > Keep the faith, and Happy Holidays to everyone. > > Sorry for the length of this post. > > Rob > dx 11/13/98 > STI/Gleevec 400mg per day > > > > > > New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com > > Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com > > CML (Chronic Myelogenous Leukemia Support List) > --------------------------------- > Part Of CMLHope.Com > An International Community Of CML Patients > For more information: http://cmlhope.com > > Post Message: [EMAIL PROTECTED] > Subscribe: [EMAIL PROTECTED] > Unsubscribe: [EMAIL PROTECTED] > Change To No Mail/Web: [EMAIL PROTECTED] > Change To Digest: [EMAIL PROTECTED] > Change To Email: [EMAIL PROTECTED] > List Help: [EMAIL PROTECTED] > CML Group Web Site http://groups.yahoo.com/group/CML > > > > Yahoo! Groups SponsorADVERTISEMENT > > > --------------------------------- > Yahoo! Groups Links > > To visit your group on the web, go to: > http://groups.yahoo.com/group/CML/ > > To unsubscribe from this group, send an email to: > [EMAIL PROTECTED] > > Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. > > > __________________________________________________ > Do You Yahoo!? > Tired of spam? Yahoo! Mail has the best spam protection around > http://mail.yahoo.com > New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [EMAIL PROTECTED] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links ------------------------ Yahoo! Groups Sponsor --------------------~--> $4.98 domain names from Yahoo!. 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