--- In [email protected], Neddo Family <[EMAIL PROTECTED]> wrote:
 
> Right now we are leaning towards transplant (given the higher 
success rates for SCT for pediatric patients provided by Dr. Druker). 
We have not made a final decision. We would like to call the 
transplant doctor and get more info. on survival rates and see if he 
absolutely has to use total body irradiation. 

__________________
Hi Barb, 
I am glad that your trip to OHSU was a good one and that you got to 
enjoy this beautiful city. 

A couple of things you might ask the transplant doctor (if you don't 
already have this info):

1) Tommy has a great unrelated match right now (12/12).....did he also 
have many other potential matches in the donor pool? (in case he did 
not have the BMT right now, would there likely be others if this donor 
were not still available). Do you know the sex and age of the donor? I 
believe that it is better to have a male donor (esp vs a female who 
has had pregnancies). Kelly might have more info on that. 

2) Some places, like the Hutch, are definitely doing full BMTs without 
TBI. So, you might inquire about any different protocols that they 
have, and also any studies/trials about newer drugs for preventing 
GVH.

3) and ask about their specific stats for someone in Tommy's age, with 
CML, etc......and how do these compare with other transplant centers. 

I think that the bottom line is that you have to be comfortable with 
your choice of treatment and with those who will be treating you. Best 
of luck to Tommy....and your family. 

Nancy C. 






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