One reason that you have not spoken with those who didn't do well on the
transplant is because they are 'dead'. Get the statistics on those who
relapse after transplant. You need to look at both sides. Once you decide,
don't look back.
I hope this helps.
Zavie
Wow Zavie! You took the words right out of my mouth but to be honest I was
scared to post it.
Glad somebody did...
I remember when I was considering the BMT at which time I was really being
pushed into it, I thought to myself that was nice of them to let me speak to
a few individuals that had a successful BMT. Then this thought followed:
"What about others that have not done so well? And it was then that I
realized very quickly why that option wasn't available.
I am sure we all try not to discourage anyone from making the choice that’s
Right for them but it sure is hard to stand by and not help someone through
that tough time that all of us have pretty much had to face.
I made a choice to wait for Gleevec and I do not look back with any regret.
And I will gladly try the next trial if ever necessary and possible.
Only as a last resort will I do the BMT. And my personal opinion is it
should be saved as a last resort.
Now obviously we all know that there are those of us who have developed
additional mutations that cannot be handled with the current treatments.
And there are those that have advanced to an accelerated phase and the
current treatments are not an option.
In these scenarios we would be in a no other option situation with the
exception of doing nothing.
With all of this being said, I am guessing you feel the same as I do about
the BMT VS GLEEVEC subject. But I must admit I am some times nervous about
my choice of words on this list when speaking about this topic.
Simply because I do not want to create a controversial problem conversation
that others will have to endure.
Therefore, I usually say what you just said in a private message!
Have a great day!
Lisa M
Dx 5-2000
Hyd/int/arc/
6-2001 400 mgs gleevec
8-2001 PCRU - ZAVIES # 111
---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.833 / Virus Database: 567 - Release Date: 1/12/2005
------------------------ Yahoo! Groups Sponsor --------------------~-->
Help save the life of a child. Support St. Jude Children's Research Hospital's
'Thanks & Giving.'
http://us.click.yahoo.com/0iazvD/5WnJAA/xGEGAA/8zSolB/TM
--------------------------------------------------------------------~->
New! Sign up for local CML support group meetings in your local community at
http://cml.meetup.com
Apply for Commercial Real Estate loans online and submit your deal to dozens of
hungry lenders in just minutes. Loan programs for all types of business and
commercial real estate. Apply anytime at http://realestatezoo.com
CML (Chronic Myelogenous Leukemia Support List)
---------------------------------
Part Of CMLHope.Com
An International Community Of CML Patients
For more information: http://cmlhope.com
Post Message: [email protected]
Subscribe: [EMAIL PROTECTED]
Unsubscribe: [EMAIL PROTECTED]
Change To No Mail/Web: [EMAIL PROTECTED]
Change To Digest: [EMAIL PROTECTED]
Change To Email: [EMAIL PROTECTED]
List Help: [EMAIL PROTECTED]
CML Group Web Site http://groups.yahoo.com/group/CML
Yahoo! Groups Links
<*> To visit your group on the web, go to:
http://groups.yahoo.com/group/CML/
<*> To unsubscribe from this group, send an email to:
[EMAIL PROTECTED]
<*> Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/
