Hi, I thought I would pipe in here because I also had the chromosome 9 deletion at diagnosis. I really didn't have too much time to worry about it because Dr. Druker told me a few months after diagnosis that it was too early to tell if it would be a prognostic factor in the gleevec era. I took that as a positive because not knowing for me at the time was better than the picture in the interferon era.
I also was not told that it had any negative prognostic outcome for a bone marrow transplant. But, I had never gone into depth on that route, because I'm one of those odd ducks (43 year old white american female) who has no known donor in the world. So I guess I looked at it like at least I don't have to make that decision. But, I have to tell you that response to treatment is the only thing anyone should really worry about. The problem with deletion 9 and interferon is people didn't usually get a good response. I have. I am undetectable by PCR 3 years out. I just had another PCR today and hopefully I will keep those great results. Getting to zero is what the goal is, with or without dletion 9. Once you do, it's kind of a mute point, because if the cml isn't there than the deletion 9 won't be there either. HOpe this helps someone, love, Susan King dx 8/2001, age 40 600 mg PCR undetectable, age 43 ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
