Dear Diane,
I am sorry to hear of this change for you! You have been doing so well for so long! Former Turtle Queen :-) Feeling shaky is certainly understandable at this point in your journey but you are in the best of hands with Talpaz to guide you. Will you try the 800 mg? I seem to remember you've had lots of side effects to manage over time since the STI trials but that over time you have found ways to manage and do quite well!?! The good news is the BMS drug and AMN are arriving so you can step over to the best one for you it if you need to. Hang in there. The current turtle Queen, Christine dx 11/98 still 100%ph+ > Nancy,and friends who have been following our stories..... > I just got the word from Dr. Talpaz and I must admit that I'm a bit > disappointed. After visiting him, I felt so good. Now, I feel like > a just got a kick in the butt! Only 5 of the 20 cells analyzed were > negative which means resistance to Gleevec is definately a > possibility. My molecular studies show a high level of disease, also. > He has suggested trying to take 800 mg. to see if it's a real issue > of resistance. I will return in July. I guess I must seriously start > considering other options - BMS being 1st on my list. I would love > to hear from others who have been down this road. I'm a bit shaken. > Dianne ------------------------ Yahoo! Groups Sponsor --------------------~--> Help save the life of a child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/0iazvD/5WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
