Thanks so much for posting this. It is unfortunate that what you say 
is so true.

--- In [email protected], "akkat832003" <[EMAIL PROTECTED]> wrote:
> 
>It is a fact that Bone Marrow/Stem Cell Transplants are very risky,
but it does not necessitate giving inaccurate information, or making
people feel bad for considering going through one. Studies are
continually in effect to discover better and better treatments for
complications and survival. But overall, survival still also depends
upon the patient adhering to the strict regimen set forth once this
treatment option is set forth.
I have heard stories of
someone deciding to go to transplant, and then they receive "hate
mail" from people they thought were their friends and supporters in
fighting this disease. Please remember that everyone needs support,
whatever their decision may be...clinical trials, ongoing therapy, or
transplant. I thought that is what these support groups were supposed
to be for-providing information and support. I guess I didn't read
the part that says these sites for only for those not considering BMT
or SCT.

It's important to take responsibility for your health. Find out what
complications caused deaths after a transplant. It is not the same
for everyone.
Thanks for listening.
Katrina"

Dane
"Beware the Armchair Oncologists"






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