Hi Heidi We are sorry to hear you are still 100% PH+ after Glivec. So is my husband, Richard, due to a P loop mutation. He is 47 and doesn't consider transplant an option due to no related donor. He is currently off Glivec and awaiting BMS Phase II trials starting in London, UK. Just wondered if you had considered the new BMS drug which is in trials at UCLA as an option before transplant.... Whatever you decide, and it is your decision, we will be here for you. Sending our best wishes across the water. Love Annette and Rich __________________________________________________________________
--- In [email protected], Heidi Galli <[EMAIL PROTECTED]> wrote: > Sorry I haven't introduced myself sooner but I'm a bit > overwhelmed.. I signed up and then was unable to get > online for a few days..Now I'm back and there are over > 900 new messages in about 1 week... That's amazing but > a bit daunting!! I have read many, learned a lot and > deleted a few. Tonight I will delete the rest and > start anew! > My Story: > My name is Heidi I am 45 years old. I was dx'd > September 25 2003. That in itself is a crazy story but > I tell it some other time. At dx my wbc's were 455,000 > hgb 5.7 hct 16 platelets 60,000. I was working full > time, a single mom 2 kids and a caregiver for my 76 > year old mom. I was wiped out..Started all the routine > meds Hydrea etc immediatly and then Gleevec in a > couple of months. My day to day (or week to week > )hemotology is terrific, wbc around 4.5 hgb 10 hct 39 > plts 180 etc.. BUT... my last BMB still showed 100% > PC+ and a new abnormality of trisomy 8?? I am now > prepping for a BMT to take place in early March at > UCLA. The bone marrow registry has found 3 perfect > matches as I have no eligible family members. This is > a very scary time for me, Did I mention single mom 2 > kids (12 & 9 )no family, full time job home etc.. I > will be working up to 2 weeks before hospitalization > but I need to get my life in order!! > Had a BMB this morning all I can do is hope for a > MAJOR change in my status, but I am determined to go > ahead for a cure, no options other than that. My kids > need me, my Mom needs me, And even my job needs me so > I have to be confident that this is how it will go. > I would love to hear pearsonnly form people who have > gone the BMT route, I know it won't be fun but I feel > well and strong now, will this be helpfull later?? > Feel free to contact me through this forum or personal > e mails to [EMAIL PROTECTED] > Any help would be appreciated. > Anyone in the LA area? > Thanx > Heidi > > > > __________________________________ > Do you Yahoo!? > Yahoo! Mail - Easier than ever with enhanced search. Learn more. > http://info.mail.yahoo.com/mail_250 ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
