Hi Heidi, sorry to hear that you've got CML and that you're not responding to Glivec. It must be har going alone with the kids. i'm 38 and have 3 children. How long have you been taking Glivec for? Have your doctors mentioned any of the new drugs to you? Keeping my fingers crossed that your latest BMB shows better results, Barbara--- In [email protected], Heidi Galli <[EMAIL PROTECTED]> wrote: > Sorry I haven't introduced myself sooner but I'm a bit > overwhelmed.. I signed up and then was unable to get > online for a few days..Now I'm back and there are over > 900 new messages in about 1 week... That's amazing but > a bit daunting!! I have read many, learned a lot and > deleted a few. Tonight I will delete the rest and > start anew! > My Story: > My name is Heidi I am 45 years old. I was dx'd > September 25 2003. That in itself is a crazy story but > I tell it some other time. At dx my wbc's were 455,000 > hgb 5.7 hct 16 platelets 60,000. I was working full > time, a single mom 2 kids and a caregiver for my 76 > year old mom. I was wiped out..Started all the routine > meds Hydrea etc immediatly and then Gleevec in a > couple of months. My day to day (or week to week > )hemotology is terrific, wbc around 4.5 hgb 10 hct 39 > plts 180 etc.. BUT... my last BMB still showed 100% > PC+ and a new abnormality of trisomy 8?? I am now > prepping for a BMT to take place in early March at > UCLA. The bone marrow registry has found 3 perfect > matches as I have no eligible family members. This is > a very scary time for me, Did I mention single mom 2 > kids (12 & 9 )no family, full time job home etc.. I > will be working up to 2 weeks before hospitalization > but I need to get my life in order!! > Had a BMB this morning all I can do is hope for a > MAJOR change in my status, but I am determined to go > ahead for a cure, no options other than that. My kids > need me, my Mom needs me, And even my job needs me so > I have to be confident that this is how it will go. > I would love to hear pearsonnly form people who have > gone the BMT route, I know it won't be fun but I feel > well and strong now, will this be helpfull later?? > Feel free to contact me through this forum or personal > e mails to [EMAIL PROTECTED] > Any help would be appreciated. > Anyone in the LA area? > Thanx > Heidi > > > > __________________________________ > Do you Yahoo!? > Yahoo! Mail - Easier than ever with enhanced search. Learn more. > http://info.mail.yahoo.com/mail_250
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