YAHOOO!!! YIPPEEE!!! Number 815 in the Zero Club Zavie Based on the PCR value of 0.00536
Hi Everyone, I hope this email finds everyone doing
well. Much love and prayers to Dane who seems to be
doing miraclously. Prayers to those of you trying to
get in the clinical trials...
I, myself have been feeling desperate in the last few
months to qualify to get in the Phase II BMS drug
trial...well, today my life took a complete 180 degree
turn around and I want to share it with everyone. If
everyone can remember, I have been seen by a doctor
for 1 year who has, since my first visit tried to
convince me I needed to go the transplant route. This
doctor left this month to take another position at a
different hospital and today I saw another oncologist
for the first time but in the same office. This doctor
told me I am doing well with the Gleevec, and he sees
no cause for transplant or the need for me to try any
clinical trials at this time. He explained to me in
about 20 minutes things I could not get this other
doctor to in over 12 visits. When I expressed how this
other doctor had not given me any hope, and had been
so persistent about transplant, his words were....he
is a transplanter and he pushes for transplant. He
told me transplant would be his last option unless I
personally just wanted to go this route or if my
condition called for it or side effects become
unbearable. He also gave me the actual copy of the lab
report which says ratio of BCR/ABL=0.00536 which he
commented he was pleased with. I'm still not certain
of the significance of this number so if anyone can
shed light on this, please let me know. I'm anxious to
hear what everyone has to comment on this matter. When
I walked out of that office today, it was the first
time since I was diagnosed that I felt any hope at
all, and it was just like this heavy load had been
lifted from me. This doctor graduated from Harvard and
has been in practice for 35 years(I looked him up and
also inquired from him directly). If it were you and
you had two totally different opinions...how can you
know which to put your faith into and truly trust. I
know several of you have emailed me personally and
through the group to comment that you felt this
previous doctor was too persistent about BMT and that
I needed a second opinion, which in fact he was my
second opinion, and now this doctor would be third
opinion. I'm feeling pretty confident with what I
heard today, as I said, he explained a lot of things
and was very straight forward with me. It's too much
to type the whole conversation but one thing he did
say that made me feel so confident was, BMT is the
only cure, it can heal... but it can also kill, but
should I truly need one, he would see that is what
treatment I got but I was nowhere near needing that
now. I hope everyone can feel what a shock this was to
me after being pressured for so long to do nothing
other than BMT. Please share with me your opinions and
your own personal similarties if there are any. I have
an appointment March 1st to see if I qualify for
clincial trial and don't know if I should go or not
and I did not mention to this doctor that I had the
appointment. He did tell me if I learned of any news
about a trial in this area that I wanted to see if I
qualified, he would help me. He did stress that all my
blood counts were normal and I was not resistant to
Gleevec so he doubted I would qualify for anything
else, and that he thought the Gleevec was working for
me at this time but if I had other reasons, such as
intolerable side effects, he would do everything in
his power to help me find another alternative.
I apologize for the long email....but I thank you all
for being here for me to consult with. I'll be waiting
to hear everyone's response. In the meantime, I am
celebrating.....LIFE! Love, Peace & Hope to All, Pat
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