--- In [email protected], "Dr. Patricia Maroudas" <[EMAIL PROTECTED]> wrote: > Hello to Everyone, > I have recently as of Feb. 2005 been diagnosed with CML. One week on Gleevac. I am a mother of two active boys and Doctor of Chiropractic. Not me I am healthy... I have been told for many years to take care of myself, that others are always taking and I am always giving. Well it is my turn now! I have studied all the materials, listened to bunches of video tapes of trials and conferences, received about 10 new books in the mail, and now I want to know from others experiences. Receiving slight stomach upset, other than that I think they got someones elses blood. Maybe that is the denial part. I have a positive attitude, eating healthy, no alcohol and praying. I would love to hear from you all. I have not met anyone as of yet with my diagnosis and would love to har from you. > Patty ____________________
Hi Patty, For many of us the dx came out of the blue. I was dx over 6 years ago (9-98) and have been on Gleevec for 5 years, since an early trial. I am a recently retired physical therapist. The side effects with Gleevec (also abbreviated IM, for chem name) can vary....often fatigue is common, some nausea, maybe bone pain early on, etc. Take Gleevec with your largest meal and drink plenty of water...that might help. Your doctor should be monitoring you with regular blood work, CBCs and chemistries, to check esp. liver enzymes. Did you have a bmb at dx and do you know what % of cells were ph+? and how high was your white count? Information like this helps us with some suggestions. Your doctor should outline to you pretty clearly how he intends to monitor your disease and determine your response to IM......by repeated cytogenetics, FISH and/or pcr testing. Have you heard or read about all of this. 2 good websites to check for additional information are: www.cmlsupport.com which list side effects and rememdies, glossary, etc. www.newcmldrug.com tons of information and also a discussion list One positive thing that I will share with you.....my cml specialist is Dr. Druker at OHSU/Portland who pioneered Gleevec. He told me about 6 months ago that now (for the first time) when he sees a new patient who is in chronic phase cml, he can tell them that their disease will be a chronic disease (vs a previous often fatal disease) managed by medication. Let us know the questions you have. Also, you might contact your state Leu & Lymphoma Society and see if they have any support meetings near you....and they might have a telephone contact CMLer if you'd like. Nancy C. Eugene, Oregon ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
