i have just returned from 8 days trip to europe and the truth is that i just cant believe or understand what has happened on the list during these days. i didnt read all the masages and i dont intend to but i just wanted to say that our strength is in our unity. i have just finished dan vaselas book about the golden pill and he himself says that he doesnt think that gleevec story would have happen without the action taken by the cml support group and the petition headed by susan macnamara. i just dont see the advantage of having a yahoo cml group, a google cml group, an asia cml group etc. i hope that all the people involved (which most of them i know and appreciate a lot) will reconsider the effects of their actions. i dont write this mail to start a new flare of arguments so please dont respond shalom (which for those who dont know is "peace" in hebrew) giora ----- Original Message ----- From: "Rob" <[EMAIL PROTECTED]> To: <[email protected]>; <[EMAIL PROTECTED]> Sent: Tuesday, March 15, 2005 9:54 PM Subject: [CMLHope] Re: [CML] Heading to the new Yahoo CML list.
> > We are sorry to see you leave Richard and appreciate all that you have > done for the group over the years. > > I think it should be noted that I have already been excluded from posting > to the new "group" and have been unable to defend myself from the nasty > personal messages that some in that group have circulated privately about > me to recruit others to their "group". Some of the messages I have seen > have stated that I have "paranoia", that I did not create the CML group, > that I was not willing to make any changes (when in fact I did create > rules but the same members who complained to start with have ignored > them), that I "hate" other people, that I have a political agenda, that > running a CML group is a "competition" to me, that I have a "huge ego", > etc. > > It is unfortunate the truth has been drowned out. I have done the best I > could with this group and it is unfortunate that things have ended up as > they are. The one thing I can say is I always done what I think is right > even if God is the only one who knows that. I am worn out. I have done all > that I could and it is unfortunate it has turned out as it has. > > Rob > > > > > ----- Original Message ----- > From: "Richard R" <[EMAIL PROTECTED]> > To: "[EMAIL PROTECTED]" <[email protected]> > Sent: Tuesday, March 15, 2005 1:15 PM > Subject: [CML] Heading to the new Yahoo CML list. > > >> >> >> Amy, >> >> Many thanks for starting a new CML group on Yahoo. I thought of doing >> the >> same myself, but am glad that you acted first. I'm heading there now, and >> canceling my membership with the old Yahoo and the new Google list. >> >> I deeply appreciate all that Rob did for us over the years, but the >> interpersonal conflicts on the Yahoo list seemed intractable, and I don't >> like having some of our most valuable members excluded from participating >> in >> the Google list. So I remain unhappily convinced that a fresh start is in >> order. Thank you for making that happen. >> >> Richard R >> >>> Date: Thu, 10 Mar 2005 22:15:11 -0000 >>> From: "Amy B." <[EMAIL PROTECTED]> >>> Subject: GROUP DISFUNCTION >>> >>> Ok,here is my two cents worth on all the YAHOO GROUP THINGS! I have >>> started a YAHOO CML GROUP. NO big deal, I clicked "start group" and >>> there it was. I am listed as "group owner" but I don't believe it >>> to be my "personal property" it is an internet group for anyone that >>> needs help with CML. Rob you have worked hard on the group, but >>> something has fallen through the cracks here. I am so appalled at >>> all the junk about personal property. Let me say, ROB if you want >>> CML please you may have it, come get MINE. I don't want it and I >>> never did. I don't want to have to be in a group of people with CML >>> I want to be carefree and able to live without Gleevec, BMT's or any >>> other treatment that might be needed. If by my being listed as owner >>> of the group makes it personal property then I'll delete myself as >>> owner and just be a member. I just want a place to go and ask >>> questions, read good outcomes, pray for good outcomes, and offer any >>> other support that is needed for anyone! Owning CML, CML Support or >>> anyting like it is not my intentions. PEOPLE with CML looking for >>> PEOPLE with CML is what it is all about, not ownership. So if this is >>> about OWNERSHIP, then this is all screwed up. Because none of us >>> with CML want to OWN it. We don't want it. We just want support, >>> friends, and so on. If you get mad about this I'm sorry, but its how >>> I feel If you want to join the new group then please come join. Its >>> just about CML.........http://health.groups.yahoo.com/group/cml2/ >> >> >> >> >> >> New! Sign up for local CML support group meetings in your local community >> at http://cml.meetup.com >> >> Apply for Commercial Real Estate loans online and submit your deal to >> dozens of hungry lenders in just minutes. Loan programs for all types of >> business and commercial real estate. Apply anytime at >> http://realestatezoo.com >> >> CML (Chronic Myelogenous Leukemia Support List) >> --------------------------------- >> Part Of CMLHope.Com >> An International Community Of CML Patients >> For more information: http://cmlhope.com >> >> Post Message: [email protected] >> Subscribe: [EMAIL PROTECTED] >> Unsubscribe: [EMAIL PROTECTED] >> Change To No Mail/Web: [EMAIL PROTECTED] >> Change To Digest: [EMAIL PROTECTED] >> Change To Email: [EMAIL PROTECTED] >> List Help: [EMAIL PROTECTED] >> CML Group Web Site http://groups.yahoo.com/group/CML >> >> Yahoo! Groups Links >> >> >> >> >> >> >> > ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
