Hi, Dane:
 
       Still recuperating from my heart attack, but wanted to wish you the best.
 
       I am convinced you will pull through all of this with flying colors.
 
All the Best,
Carl
 
       

Dane <[EMAIL PROTECTED]> wrote:
Return Visit to MDACC and 100 day biopsy results.
 
Had a very frustrating trip to Houston today to discuss the results of my last biopsy, because some of the information is missing and some of the test results contradict other test results.
 
I will compare the results of my 60 day biopsy with my 100 day biopys.
 

60 Day biopsy:
Peripheral Blood PCR 5.6
Bone Marrow PCR 13.5
100% Donor Cells
 
100 Day Biopsy:
Peripheral Blood PCR 1.8 (good decline)
Bone Marrow PCR: info missing, test was never completed.
Bone Marrow shows 100% donor cells, but the peripheral blood shows only 79% donor cells. (very bad)
 
My onc thinks this is  donor cell discrepancy is an anomally and spoke with the head of the lab, who agrees.  They are running the test again on the same sample they took two weeks ago.  Hopefully, it will confirm that I am still 100% donor cells, and that the peripheral blood reading was an error.  As it stands right now, the onc does not no for sure if I am getting better (the drop in Peripheral Blood PCR value indicates that, my blood counts indicate that), or if I am getting worse (he has to clear up this donor discrepancy first)
 
Talk about a rock and a hard place!
 
Good news is the central line was yanked out today! Yay....that thing gets to be a real ball and chain after a while.
 
We decided to reduce the tacrolimus as planned even though the discrepancy exists...so now I am on 1mg every other day.  Half of what I was originally taking in the beginning.  I also remain on 600mgs of Gleevec.
 
So, although the signs are good that things are improving, we have to wait for retesting results to disprove the anomally.
 
I go back down in two weeks for another test (just peripheral blood)
 
We drove all the way down there, spent a night at the Rotary, spent the whole day at the hospital, and came back with questionable and partial information. Frustrating. 
 
That's all the info I have now...will update again when I know more.
 
Regards and Prayers, DT


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