Re: [CML] requesting help with use of gleevec and mouth sores

[Barb Neddo]

My son has CML and underwent a BMT. He had mucositis. He used a saline mouth rinse several times a day. He also uses Biotene toothpaste. A list member from another group recommended taking a vitamin E capsule, puncturing it, and squeezing the contents into your mouth and swishing it around. Then swallowing it. I did find a reference to using Vitamin E to treat mucositis:

www.cancer.gov/cancertopics/pdq/supportivecare/oralcomplications/healthprofessional/allpages/print

We did not use the Vitamin E and his mucositis is gone. I know that good oral care is a must. Brush the teeth and the tongue with a soft tooth brush 3 - 4 times a day. I hope this helps. Vitamin E has limitations as far as dosage. Check to see what the recommended max is per day if you decide to go this route. I hope this helps.

Barb Neddo
http://www.caringbridge.org/wi/tomneddo

On Jun 6, 2005, at 7:28 AM, bsnhavr wrote:

Hello everyone,

I am a gist patient, however, I have joined the CML group hoping to
get your input regarding a gleevec side-effect that I am experiencing.
I am presently taking 600 mg per day of gleevec.  At this dose, I am
experiencing whitish-colored mouth sores and blisters.  This is
uncomfortable, and makes it difficult to eat.  My local oncologist is
calling it mucositis, and feels that it is a gleevec side effect.  The
gist specialist at Fox Chase Cancer Center believes that it may be a
yeast infection--however, it has not improved with use of Diflucan. 
Hs anyone had any experience with this type of problem while taking
gleevec?  If so, do you have any tips regarding management of it?  I
read on-line about a new drug called Palifermin that has proved useful
for the treatment of chemotherapy-induced mucositis.  I haven't asked
my Dr. about it yet.  I would appreciate any feedback.  Thanks for
letting me join your group!

Becky Bensenhaver
Winchester, Virginia





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