Re: [CML] Re: Drug Co take-over of patient groups

[Rob]

The Seattle Times story today really raises a lot of disturbing questions. In some of the cases it cited the entire process from start to finish often is so tainted with drug company money that it completely overrides medical science. With so many drugs in the pipeline for diseases like CML it will become an even more difficult situation in the future. If drug company ABC owns and/or controls a patient group site and email group will they give objective information about other perhaps better drugs from other companies? In groups and sites that are heavily censored and controlled by the drug industry, people should ask themselves if they are getting the information they need.      Rob   ----- Original Message ----- From: Cynthia Schaefer To: CML@yahoogroups.com Sent: Monday, June 27, 2005 5:12 PM Subject: [CML] Re: Drug Co take-over of patient groups Rob,thank you for bringing this issue to the group.  I have always been concerned with corporate money invading non-profit organizations.  I suppose that I am naive about how much influence drug companies may have over,even cancer support groups, that take what they offer.  I used to work for a non-profit mental health organization and drug companies and insurance companies had alot of influence in the medical programs.  Groups like the L&L Society do alot of good education and other programming with drug co money so it seems to be a two-edged sword.  However,we don't know how policy is determined or what agreemnts have to be made for the financial support.  Others may disagree with my opinions but please respond to CMLHope or Yahoo and not to my private e-mail.  Rob,also thanks for keeping this group out of the money pit.  Cynthia Bates Schaefer New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML YAHOO! GROUPS LINKS  Visit your group "CML" on the web.    To unsubscribe from this group, send an email to:  [EMAIL PROTECTED]    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.