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Higher doses of Gleevec have had good results in many patients.
Rob
----- Original Message -----
Sent: Sunday, July 03, 2005 5:40 PM
Subject: [CML] I'm Back
Hello All,
Here is a simple update on where I have been
and what has been going
on.
I started the summer semester off
with a bang on the 13th of June. I
attended classes on the 13th and
14th. The evening of the 14th I
came in from school with a spliting
headache. I have had headaches
in the past but nothing like this
one. My wife took my temp and I
was running near 103. She saw
me through the night and the next
morning called my ONC. He said to
get the ball rolling and get me to
an emergency room. So off we
went. Several hours later we were seen
by the doctors and after
pumping me full of various pain meds and
running many test it was
determined that I had viral minigitus. I
was placed on a ward and
soon developed pneumonia on top of the
minigitus. After a hard
battle and 11 days in the hospital I was
released to the house. I
was told that I would be weak for several
weeks and I would gradually
build my strength back up.
I am proud to say that today I cut the
grass. I still am not 100%
but I feel stronger everyday.
I
had to drop all classes this summer which puts me almost a year
behind but
at this point I really don't care. The fact that I am
well is more
important than school right now.
A few days ago I went for my monthly with
the ONC. He had some bad
news. Last month we ran the FISH and
PCR test. The resuls came in
while I was in the hospital. I
didn't get the FISH results yet but
the PCR came back positive. He
said that a number wasn't sent and he
is contacting the company for the
actual numbers. He also told me
that as soon as all of this other
stuff is cleared up he is bumping
me up to 600mg of Gleevic. He is
also once again pushing for a
transplant. I hate to hear
that!
Anyway, that is where I have been and what has been going on. I
hope
life finds you all well and cared for. I will update you as I
get
more info myself.
Smile,
Michael
Herring
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