--Sounds like you had a bad time of it; glad you are home and getting back to normal. Were you taking your IM through all the sickness? I think the CML is always there lurking ready to pounce on us at any given time. I read where most people don't die of CML but of complications of the CML. I have been really tired lately and started back on my blackstrap molasses. It really helps. Good luck and keep improving. Jeanie<3 - In [email protected], "Rob" <[EMAIL PROTECTED]> wrote: > Higher doses of Gleevec have had good results in many patients. > > Rob > ----- Original Message ----- > From: mherr252742003 > To: [email protected] > Sent: Sunday, July 03, 2005 5:40 PM > Subject: [CML] I'm Back > > > Hello All, > Here is a simple update on where I have been and what has been going > on. > I started the summer semester off with a bang on the 13th of June. I > attended classes on the 13th and 14th. The evening of the 14th I > came in from school with a spliting headache. I have had headaches > in the past but nothing like this one. My wife took my temp and I > was running near 103. She saw me through the night and the next > morning called my ONC. He said to get the ball rolling and get me to > an emergency room. So off we went. Several hours later we were seen > by the doctors and after pumping me full of various pain meds and > running many test it was determined that I had viral minigitus. I > was placed on a ward and soon developed pneumonia on top of the > minigitus. After a hard battle and 11 days in the hospital I was > released to the house. I was told that I would be weak for several > weeks and I would gradually build my strength back up. > I am proud to say that today I cut the grass. I still am not 100% > but I feel stronger everyday. > I had to drop all classes this summer which puts me almost a year > behind but at this point I really don't care. The fact that I am > well is more important than school right now. > A few days ago I went for my monthly with the ONC. He had some bad > news. Last month we ran the FISH and PCR test. The resuls came in > while I was in the hospital. I didn't get the FISH results yet but > the PCR came back positive. He said that a number wasn't sent and he > is contacting the company for the actual numbers. He also told me > that as soon as all of this other stuff is cleared up he is bumping > me up to 600mg of Gleevic. He is also once again pushing for a > transplant. I hate to hear that! > Anyway, that is where I have been and what has been going on. I hope > life finds you all well and cared for. I will update you as I get > more info myself. > Smile, > Michael Herring
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