> Anyway, What can I expect taking Gleevec? Can I do normal activities? Yes, I have asked the doctor, But he's never had CML . Yes, He's a professional, but I think you know what I'm saying . Any advice would be appreciated.... > > Blessings ! > > Kelly Ann in Tennessee ...
Kelly Ann, Your story touched my heart and I wanted to welcome you to the club that nobody wants to join! First of all, know that your feelings are completely normal. Secondly I would like to tell you about a website where you can learn a lot of good information about CML and gleevec. It is run by another CML patient named Jennifer that is also a member of this group. The address is www.cmlsupport.com It is a great site for new and old patients alike. As far as your insurance goes, they should have an appeals process that you can use to get them to pay more of the cost. Gleevec is now the standard front-line therapy to treat CML and is covered by most insurances. I pay a $75 a month copay and I know a lot of others pay a lot less depending on their insurance. Where are you being treated? Are you being seen by a CML expert? CML is a pretty specialized field and a lot of the regular hemo-oncs dont know much about treating it. I travel from Kansas to Houston twice a year to see a specialist at MD Anderson. And I know of a lot of others who travel to various centers around the country also. If you are not being seen by a specialist, that might be something that you should consider if you can afford it and if your insurance would cover it. Just remember, that your life is NOT over and that this disease is very treatable. Just think of this as starting a whole new chapter of your life that will include a lot more ups and downs than you are used to, but one that you can get through with the help of your family, friends, and this group! Ask any questions that you can think of. Knowledge is power!! Take care, Trisha--age41 Parsons, KS dx 9/99 ------------------------ Yahoo! Groups Sponsor --------------------~--> <font face=arial size=-1><a href="http://us.ard.yahoo.com/SIG=12kpvosle/M=362329.6886305.7839473.1589681/D=grphealth/S=1705061628:TM/Y=YAHOO/EXP=1123608190/A=2894322/R=0/SIG=11hnli5rs/*http://www.youthnoise.com/page.php?page_id=1997";>AIDS in India: A "lurking bomb." Click and help stop AIDS now</a>.</font> --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
