Hi Mary,
I am 27 years old, so I know how difficult it is for your son. I am not sure if I read about why your son went through bmt, if gleevec did not work, or he couldn't get into bms and other trials, but I will keep him in my prayers. I wish I can email him something to encourage him, something what helps me, but I did not go through bmt.
I am so happy to see how parents become a part of this support group and may get informed and be involved in fighting this disease. I wish my parents can do that.
God bless you,
Livia
Mary Ann Quarcini <[EMAIL PROTECTED]> wrote:
Mary Ann Quarcini <[EMAIL PROTECTED]> wrote:
My son Matt, 22 years old had BMT in Jan 2005 - donor was unrelated match. He has had several set backs - His attitude has changed dramatically as I think he is getting tired of all the bad news. Please keep him in your prayers. Thank you, Mary Ann CML Mom son dx July 2004
Note: forwarded message attached.
Date: Tue, 9 Aug 2005 09:02:02 -0700 (PDT)Wishing you all a bright & blessed Spring!Love, Mary
From: Mary Ann Quarcini <[EMAIL PROTECTED]>
Subject: Update on Matt
To: Ernest Angley <[EMAIL PROTECTED]>, Joe Carmola <[EMAIL PROTECTED]>,
Cherie <[EMAIL PROTECTED]>, Cindy <[EMAIL PROTECTED]>,
Mary Corio <[EMAIL PROTECTED]>, Joyce Davis <[EMAIL PROTECTED]>,
Lori Dillon <[EMAIL PROTECTED]>, Irene Falkowski <[EMAIL PROTECTED]>,
[EMAIL PROTECTED], Steve/Teashe Ferrence <[EMAIL PROTECTED]>,
Michelle/Kathy Getty/Rubino <[EMAIL PROTECTED]>,
Linda Gonzales <[EMAIL PROTECTED]>, [EMAIL PROTECTED],
Bonnie Haren <[EMAIL PROTECTED]>, Judy Hatalak <[EMAIL PROTECTED]>,
Tammy Hildebrandt <[EMAIL PROTECTED]>,
Nancy Huntsman <[EMAIL PROTECTED]>,
Chris Hurford <[EMAIL PROTECTED]>, Midge Kogler <[EMAIL PROTECTED]>,
Dad LePosa <[EMAIL PROTECTED]>, Gail LeQueux <[EMAIL PROTECTED]>,
Candace Lloyd <[EMAIL PROTECTED]>, Patty Lum <[EMAIL PROTECTED]>,
"Linda M." <[EMAIL PROTECTED]>, Marilyn McKinney <[EMAIL PROTECTED]>,
Annie Miles <[EMAIL PROTECTED]>, Linda Mussari <[EMAIL PROTECTED]>,
Sammy Mussari <[EMAIL PROTECTED]>,
Chris Naso <[EMAIL PROTECTED]>, Chuck Naso <[EMAIL PROTECTED]>,
Sue Oster <[EMAIL PROTECTED]>,
Steve Quarcini <[EMAIL PROTECTED]>, Sue Quarcini <[EMAIL PROTECTED]>,
Tina Quarcini <[EMAIL PROTECTED]>, "Candy R." <[EMAIL PROTECTED]>,
"Gloria R." <[EMAIL PROTECTED]>, Ruthy <[EMAIL PROTECTED]>,
[EMAIL PROTECTED], marlene sell <[EMAIL PROTECTED]>,
Sharon <[EMAIL PROTECTED]>, Shelly <[EMAIL PROTECTED]>,
Theresa Stachowiak <[EMAIL PROTECTED]>,
Randy Stewardson <[EMAIL PROTECTED]>, Sandy Sturm <[EMAIL PROTECTED]>,
Tim Thomas <[EMAIL PROTECTED]>,
Uncle Jim & Aunt Pat Thompson <[EMAIL PROTECTED]>,
Jim Trubits <[EMAIL PROTECTED]>, Lynn Watts <[EMAIL PROTECTED]>,
Carla Weir <[EMAIL PROTECTED]>, Ann Willaman <[EMAIL PROTECTED]>
Hi everyone. The cultures on Matt have still been coming back negative for infection, which is good news. He has no fever, pressure is better & sugar level is fine. The kidney functions are doing better & his graph vs host disease on his skin has calmed down greatly. On the flip side, the billirubin levels with his liver have increased dramatically. Normal count is 1.5 and as of this morning his is 34.5 As you can see that is VERY concerning to the doctors here and us. They believe that the rejection disease of graph vs host is getting into his liver and it is much harder to treat it when it's there. They continue to try & bring it down and if the medications that they are giving him for it are going to work, we should see his counts dropping in a week or so. The doctor said that sometimes the medications will not work and the liver will continue to get bad. Please, please pray that his liver will start clearing up and working right again soon. He could become in critical condition as this is a life threatening situation. Matt has been pretty discouraged also. He seems to be giving up. It's so sad to see that and hurts greatly. We love you all & thank you for your continued support & prayers. May God Bless you all, Mary, Rick & family
Wishing you all a bright & blessed Spring!Love, Mary
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