Suzan, I am so glad to hear that you are feeling better with the new meds for your muscle spasm. I have for some time a pain too in my arms and weakness in my left arm muscle which I am seeing my doctor tomorrow and will request a neurologist to check it out. Thank you for the hint. I hope that later you may not need the depression meds. Less meds is better and safer.
GOD BLESS
Teresa T
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Hi all it has been awhile since my last post. I have finally began to feel human after a year and half of being sick. I got sick in Feb 04 and was dx in June 04. I began 400 mg of Gleevec the midle of June 04. I like a few of the others have had terrible side effects that have continued until recently. I was at 98% positive and in March 05 at 3% postive. I will have another BMB in Sept. I was in the hospital last month with an upper resp. infection and my daughter mentioned to my doctor about how severe my muscle spams are. He saw me in agony and had a neurologist check me out while I was in the hospital. He dx me with syptomatic torsion dystonia http://www.medicinenet.com/dystonia/article.htm and I was prescribed a medication for the spams. I am due to have a follow up with another neurologist in Oct for this. In the mean time I added a link to the site I found and was surprised to find that they found a gene that is linked to the # 9 chromosome.I am feeling better, my doctor has manged my pain that I continue to have with pain med's down to two a day. The nausea is finally better, the diarehia has gone away, the cramps are taken care of with the new pain med, and I am finally at the point where I feel like getting out, and my depression is being managed with med. I spend less time in bed now too. It seems like this new dx and med has been a turning point for me. I showed the article to my doctor and she found it odd to. She said she wished that she had known that the spams were from something other than the Gleevec, since they are a side effect of Gleevec. I asked if maybe that fact that this dx is also tied to the #9 chromosome if there may be a link between the spams some of us suffer is because maybe Gleevec somehow intensifies them. I never had spams like these before. So finally after over a year in pain and other side effects like others have said they do get better. I just wished it had not taken over a year for me to get better.Take care.Suzan
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