--- In [email protected], RANDY REESE <[EMAIL PROTECTED]> wrote: >Hi Randy, Sounds good. I just came back from my Oncologist and he prescribed a diuretic because I have Gleevec round face. He told me to take the diuretic every other day and he wants to check my Potassium level in 3 weeks. He also mentioned there are several other anti-CML drugs that should hit the market in the near future. Keep the faith. At least there's a specific drug for CML and maybe more on the way! Kevin
> HI KEVIN - THANKS FOR THE NOTE. I STARTED GLEEVEC 400 MG 2/05. WENT > OFF OF IT FOR PROBABLY 2-3 WEEKS TO HAVE A LOBECTOMY. JUST LAST > MONTH, MY ONC TOLD ME THAT I WAS NOT IN REMISSION AND TO INCREASE > TO 600 MG. I WAS JUST BEGINNING TO FEEL MORE NORMAL WHEN I GOT > THIS NEWS. SO NOW, I'M WORKING ON THE USUAL SIDE EFFECTS. I DON'T > REMEMBER HAVING ANY NIGHT SWEATS, BUT EVERY EVENING, I WOULD > FEEL LIKE I HAD A LOW GRADE TEMP, BUT DURING THE DAY, I WAS USUALLY > FREEZING. THANKS TO WHAT I'VE READ HERE, I NOW DRINK LOTS MORE > WATER AND AM EATING A MUCH HIGHER FIBER DIET. THAT IS DEFINITELY > HELPING. I THINK I WAS DEHYDRATED. I DON'T HAVE THE FEELING OF BEING > AS TIRED AS WHAT OTHERS ARE SAYING. THE ANEMIA IS "NOT SEVERE" SO > I WILL TALK WITH HER TOMORROW, BUT I REALLY DON'T WANT ANYTHING ELSE > IF I CAN DO IT ON MY OWN THROUGH DIET, FOR EXAMPLE. ONE OF THE MAJOR > SIDE EFFECTS OF GLLEVEC AND PROCRIT IS DIARRHEA. WELL, THAT HAS BEEN MY NEMESIS SINCE I STARTED GLEEVEC. I THINK I HAVE IT MOSTLY UNDER CONTROL NOW AND DON'T NEED ANOTHER CAUSATIVE FACTOR. KNOW WHAT I MEAN! > THANKS FOR YOUR HELP. I WILL LET YOU KNOW WHAT THE OUTCOME IS. > RANDY > > "Kevin G." <[EMAIL PROTECTED]> wrote: > --- In [email protected], RANDY REESE <[EMAIL PROTECTED]> wrote: > >Randy, How long ago did you start on Gleevec? When I started, I had > profuse night sweats and serious abdominal cramps for 2 or 3 nights. > The next time I went to my oncologist, he told me I was anemic and > he was considering putting me on Procrit. He waited a couple of > weeks and my RBC count started to rise, so I never got on Procrit. > It could be the same for you if you just started up on Gleevec. The > night sweating and cramps are your leukemic cells dieing. It's a > good thing. As for Procrit itself, ask the Doc but I believe it's > supposed to be very efficatious. I'm telling you this because if you > just started, your RBC's may start increasing in number (rather > quickly- ie. 2-3 weeks). Hope this helps. Good luck! > Kevin > > > > I'M LOOKING HELP IN DECIDING WHETHER OR NOT TO GO ON PROCRIT. DR. > CALLED > > FRIDAY INFORMING ME I WAS NOW ANEMIC AND WOULD LIKE FOR ME TO > CONSIDER > > GOING ON PROCRIT. ANY ONE HAVE EXPERIENCE, SIDE EFFECTS, GENERAL > FEELINGS ABOUT PROCRIT? WRITE SOON, I SEE HER THURSDAY 11/10/05. > THANKS. > > RANDY > > > > > > > > > > > > --------------------------------- > > Yahoo! FareChase - Search multiple travel sites in one click. > > > > > > > > > > > New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com > > Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com > > CML (Chronic Myelogenous Leukemia Support List) > --------------------------------- > Part Of CMLHope.Com > An International Community Of CML Patients > For more information: http://cmlhope.com > > Post Message: [email protected] > Subscribe: [EMAIL PROTECTED] > Unsubscribe: [EMAIL PROTECTED] > Change To No Mail/Web: [EMAIL PROTECTED] > Change To Digest: [EMAIL PROTECTED] > Change To Email: [EMAIL PROTECTED] > List Help: [EMAIL PROTECTED] > CML Group Web Site http://groups.yahoo.com/group/CML > > > > > SPONSORED LINKS > Chronic myelogenous leukemia Leukemia treatment Cml > > --------------------------------- > YAHOO! GROUPS LINKS > > > Visit your group "CML" on the web. > > To unsubscribe from this group, send an email to: > [EMAIL PROTECTED] > > Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. > > > --------------------------------- > > > > > --------------------------------- > Yahoo! FareChase - Search multiple travel sites in one click. > ------------------------ Yahoo! Groups Sponsor --------------------~--> Dying to be thin? Anorexia. Narrated by Julianne Moore. http://us.click.yahoo.com/pL1caD/sbOLAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
