This is from another list. It has some information that may be useful to those who have young children who have CML.
 
Rob
 
----- Original Message -----
Sent: Thursday, November 17, 2005 6:25 AM
Subject: Re: [Leukemia] Noah's bonemarrow transplant

Sandra,
I am so sorry for you and your family to have to deal with this awful illness when looking forward to so much more at such a young age.  There is a group of volunteers called, Chemo Angels, they will send cards and packets not only to the patient, but to the siblings as well.  They can be found at Chemo Angels on the web.  Another support group for siblings is Super Sibs, they support the siblings.  Sending them trophies for being them, and little notes and ideas on how to make the best of the situation.  They are at SuperSibs.org.  Also, if you or your son or daugther-in law have a moment, they can sign up for Caringbridge.org.  A free web page for the child to keep everyone updated on his status, with picture sites available as well as a guest book for people to leave notes of encouragement.  We will be praying for Noah.
Blessings,


sandra teapole <[EMAIL PROTECTED]> wrote:
My 8 mo. old grandson is scheduled November 21 to get his bonemarrow transplant he will be in Cincinatti Childrens hospital  3333 Burnet Ave. Cincinatti , Ohio 45229 ( Noah Willis ) he was Diagnosed with Mylemonocytic Leukemia at 8 weeks old and was given 10 - 20 percent chance of survival ,his white count is 50,000 he will be  there 100-120 days any one wanting to send cards may do so. he has been very sick they started extensive chemo last friday .please keep him in your thoughts and prayers . He has 2 brothers Seth 4 and Connor 2 that love him very much. keep  us in your prayers !
God Bless you , Sandra

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Cindy Fanning
www.caringbridge.org/ma/allyfanning


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