Hello Everyone,
I have been a quite member of this board since I was diagnosed
October 2003. I have always looked to the board to help with questions
I may have. Here is my story....
I was diagnosed in 2003 with cml philadelphia positive. I was put
on Gleevec 400 mg right away. In May of 04 the doc upped my Gleevec to
800mg. I have had bone marrow biopsies every 6 months. Well my last
bmb was on Nov 2. The results were that there was no evidence of the
leukemia except for the philadelphia chromosone. Now I am wondering
what do I do now? I have been on Gleevec for 2 years and haven't hit
remission, so I wonder if I ever will. I asked my doc if a bmt would
help me hit remission. I have an appointment on Dec 5. I have no idea
what questions to ask. I am not that fluent in all the terms of
leukemia, so can anyone help me. My family doesn't think a bmt is what
I need they think that since the gleevec is working to an extent,
there theory is why mess with a good thing. But how come I haven't hit
remission yet? I am sooo tired of sitting in limbo. I just feel like
I have to explore all my options. Does that make sense? I live in
Brunswick Georgia and my appt is with Emory Hospital in Atlanta. The
doctor said i need to have a bunch of questions to ask the specialist.
But I am not sure what I need to ask.
I have no siblings. I know that is important. What should I do?
Thank you to everyone for the guidance I have recieved, I look forward
to any advice anyone has to give.
Thanks,
Germaine
age 28
dxd oct 2003
gleevec 800mg
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