Hello
I don't think that I will be able to help you, but
we are some what in the same boat I am 24 years old
and DX in Nov of 2003. I am only taking 400mg and not
the 800mg. My chromosone are also high, I am not in
remission. BMT is up to you, but i think I have to
agree wiht your family ( Why mess with a good thing.)
This is also my way of seeing it. I am hoping to
never have to transplant. My Bcr is going dowm every
three months very slowly, but unitl they are still
going dowm I am not going to transplant. Im sorry but
I dont know which questions you should ask, But if you
come up with anything I would love for you to let me
know, I have my nest appt. Dec 8th. Hope I help
--- germaine_bengston <[EMAIL PROTECTED]>
wrote:
> Hello Everyone,
>
> I have been a quite member of this board since
> I was diagnosed
> October 2003. I have always looked to the board to
> help with questions
> I may have. Here is my story....
> I was diagnosed in 2003 with cml philadelphia
> positive. I was put
> on Gleevec 400 mg right away. In May of 04 the doc
> upped my Gleevec to
> 800mg. I have had bone marrow biopsies every 6
> months. Well my last
> bmb was on Nov 2. The results were that there was no
> evidence of the
> leukemia except for the philadelphia chromosone. Now
> I am wondering
> what do I do now? I have been on Gleevec for 2
> years and haven't hit
> remission, so I wonder if I ever will. I asked my
> doc if a bmt would
> help me hit remission. I have an appointment on Dec
> 5. I have no idea
> what questions to ask. I am not that fluent in all
> the terms of
> leukemia, so can anyone help me. My family doesn't
> think a bmt is what
> I need they think that since the gleevec is working
> to an extent,
> there theory is why mess with a good thing. But how
> come I haven't hit
> remission yet? I am sooo tired of sitting in limbo.
> I just feel like
> I have to explore all my options. Does that make
> sense? I live in
> Brunswick Georgia and my appt is with Emory Hospital
> in Atlanta. The
> doctor said i need to have a bunch of questions to
> ask the specialist.
> But I am not sure what I need to ask.
> I have no siblings. I know that is important. What
> should I do?
>
> Thank you to everyone for the guidance I have
> recieved, I look forward
> to any advice anyone has to give.
>
> Thanks,
> Germaine
> age 28
> dxd oct 2003
> gleevec 800mg
>
>
>
>
>
>
>
>
>
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