Re: [CML] Re: Just diagnosed

Wed, 30 Nov 2005 21:17:23 -0800

Hi Terri,
 
At the moment I am tolerating night sweats, sometimes a low grade temperature and of course the spleen.  My daughter says I'm become a hypo because before I knew about this disease I had no symptoms at all apart from tiredness which I just couldn't understand.  I reckon I'm feeling sorry for myself and I've got to get a grip.  No I had no idea at all about this, had never even heard of the disease!  Now my head is being bombarded and laughing to myself at the same time.
 
Talk about a whole life change in a matter of a couple of weeks.  Sure makes me appreciate things.

terriusa2004 <[EMAIL PROTECTED]> wrote:
Hi Jackie
I am so glad you found us but sorry for why.  I was diagnosed at age
49 on Feb 8 2004.  I feel like I am still new to this.  I had the
tiredness and joint pains and night sweats and contributed them to
getting old.  Who would have thought.  My kids are grown thank
goodness.  I have been doing really well on the Gleevec.  I work for
the USPS which can be both stressful and physical and I have been
fortunate to not have to miss work for CML.  I am very fortunate
that I have good insurance so my copay for Gleevec is only 20$ per
month.  I cant figure how folks can afford to get it without
insurance.  I just tell folks that I will have to work till I die so
I can afford to buy the meds.

Take care and keep us informed
Terri


--- In [email protected], Blue Shadow <[EMAIL PROTECTED]> wrote:
>
>
> Dear Group,
>   
>   I have been diagnosed with CML two weeks ago and although I am
determined to be 100% positive I am also scared.  Baffled too
because this disease seems to hit older people.  I am 44 living in
Melbourne, Australia.
>   
>   I have to be OK for my two daughters.
>
> I should be going on Glivec the end of this week or the beginning
of next.
>
> The doctor has told me that I have 80% chance of total remission
in 3 months.  I can't wait to get on these pills and blast these
damned things out.
>
> Few symptoms at the moment apart from tiredness and a too large
spleen which is annoying.
>
> I am hoping that there is someone around where I live who I could
talk to?
>   
>   Jackie
>
>            
> ---------------------------------
>  Yahoo! Music Unlimited - Access over 1 million songs. Try it free.
>






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