Hi Jackie,
I'm sorry you've had to join our group but we welcome you to the best support
and informational site you'll find. The people here are warm and supportive.
You are right that the average age for diagnosis is in the upper 50's, but it
does happen to other ages occasionally. My son Tony, was diagnosed 3 years ago
at age 12. There are aprox. 10 other children and teens with cml whose parents
read this site, as well as others from age 20 and up. Gleevec is a miraculous
drug, and you should do well on it. There are many drugs which may prove to be
even better in trials right now, and hopefully available to us just around the
corner. The best advice I can give you is to educate yourself, but don't read
anything written prior to 2001 when Gleevec was introduced. Knowledge is
power, and being one step ahead of your oncologist isn't a bad idea either :-)
Take care of yourself, don't over do it, and you'll be just fine. Again,
welcome to our support group. Karyn, Tony's mom
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Dear Group,
I have been diagnosed with CML two weeks ago and although I am determined to be 100% positive I am also scared. Baffled too because this disease seems to hit older people. I am 44 living in Melbourne, Australia.
I have to be OK for my two daughters.
I should be going on Glivec the end of this week or the beginning of next.
The doctor has told me that I have 80% chance of total remission in 3 months. I can't wait to get on these pills and blast these damned things out.
Few symptoms at the moment apart from tiredness and a too large spleen which is annoying.
I am hoping that there is someone around where I live who I could talk to?
Jackie
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