Re: [CML] FYI

Mon, 05 Dec 2005 13:29:17 -0800

Hey Finished:
 
So what are you supposed to do if Gleevec is not "your pot of gold?"  For a few of us Gleevec is not the answer. For us few that "the gold" does not work on,  we will do what we have to do to try to continue to live, just like you would if you were in our shoes.
 
TS

IAintFinishedYet <[EMAIL PROTECTED]> wrote:
Regarding: BMT
 
It is being 'tooted' as a CURE by the transplant doctors and specialists for statistical purposes. It is not a cure when we have brothers & sisters dying who were living the Gleevec life. 30% in 1st 3 months, over 50% the 1st year.
 
We have a Chronic Disease, brothers & sisters have survived since 1998 with our gold. We have the other drugs, trials, the vaccine and research on the horizon. We want the 'quick fix', but a BMT is not a cure when it fails and we're living the Gleecec life again. GVHD cannot be taken lightly, it's a killer. So very much to consider, but every aspect in life should be considered.


"K"
"I AIN'T FINISHED YET"!!!

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