Hi Anjana,
His BMR will be available on 24th Apr. Is it possible
that his body has stopped producing RBC?????????
One thing which I would like to tell you is that even
with such low HGB he is not feeling weakness as he
used to have initially. I don't know what should I do
but one thing is sure I won't let him die due to this.
Please keep on replying and helping me out.
Bye.
Amit.
--- anjana <[EMAIL PROTECTED]> wrote:
>
> Hi Amit,
>
> AIIMS is one of the best hospitals in India. Talk
> to your Dad's
> doctor when you get the BMA report. If CML is under
> control, then ask
> the doctor why the red blood cell count and HGB are
> going down so much
> . I have not seen it go down this much as a
> side-effect of Gleevec.
> Also discuss with him if it is possible for your Dad
> to take Eprex
> injections instead of having transfusions all the
> time. Eprex is a red
> cell booster and will grow red blood cells. Some
> Gleevec patients who
> have low red blood cell count take Eprex (it is
> called Procrit in the
> US). In India, Eprex may be expensive, though.
>
> If you find the doctor cannot pinpoint the cause
> of the low RBC, I
> would advise your Dad to consult with either Dr.
> Suresh Advani or Dr.
> Tapan Saikia in Mumbai. They are top oncologists in
> India and my
> husband's doctor respects them a lot. Even if it
> means a trip to
> Mumbai, I think it is worth it if no solutions are
> found. Don't lose
> heart, Amit, you must be strong for your Dad and I
> am sure a second
> medical opinion is always a good thing.
>
> Please keep us posted.
>
> Best Regards,
> Anjana
>
>
>
>
>
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