Hi Allyson, Wow, you have been through so much. When I think back to when I was 28 or 29 I had quite a few things on my mind, but I can tell you cancer, or leukemia wasn't one of them. So, I certainly take my hat off to you!
I understand that sometimes it is hard to ask all the questions and stay on top of it all. This is a complicated disease. When I was first dxed over 5 1/2 years ago, the thing I remember the most is "not knowing what I didn't know". The doctor would ask if I had any questions - well, of course I didn't! It took time and lots of reading, but eventually you start to fine tune your life styles and investigate a bit more. Much like you, I too am very active, I travel and head up the CML Society of Canada as well as work in my "paying job". Like many other fellow CMLers involved in educating and supporting our fellow patients, I do not accept payment for anything I do. So, I have to keep my paying job going - very often the "paying job" funds some of the activities I do with the CML Society. Glad you find that IM and IFN are balancing each other out for you. Just so that you know, back in the pre IM days when IFN was the "only" game in town, many patients were on 100 times (if not more) of the dose of IFN you are currently taking, therefore when you hear some of the stories you need to put that into perspective. The incredibly high doses of IFN were quite debilitating. I am grateful I never went to those levels. My treatment with IFN was at around what your are currently receiving. I never had GI problems or memory issues at this level, but that is not to say other patients would not, we all tolerate and metabolize differently. Cheers and all best wishes to you, Cheryl-Anne --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
