----- Original Message -----
Sent: Thursday, August 17, 2006 7:11
PM
Subject: [CMLHope] help me help a
friend
Hi to all, I just recieved this cry
for help from a friend. He needs advice and I'm not the one with many
answers! Could some of you please give some ideas that I might be able
to pass along?
Thank you all in advance,
Jim Rodeghier
dx 4/97
Gleevec 5/01
T/Remission 3/02
Dear Jim,
I hope your myeloid leukemia is stable. I'm
writing because my has taken a strange turn and I new some input
!
My PCR?FISH just came back and it has risen from
29.8% to 50%. The onco has moved me to 800 mgs. of Gleevec for the next
three months and if this dosage doesn't bring things down then it will be time
to try Sprycel, which as you may know is 300% stronger than
Gleevec.
I have another problem which has surfaced
related to the myeloid. Two lesions have come up on my hands; One the right
hand was originally diagnosised as Sweets syndrome but a later biospy
says that the tissue on both my right hand and left forearm is Pyoderma
Grangrenous. The lesion on my right hand, is at the juction of my finger
closest to my thumb and right on top of the knuckle of that finger. High doses
of prednisone (60-40mgs. daily) worked to start with (severals weeks
ago) but now has little or no effect on the lesions. My dermatologist had
another biospy done on Thursday to try and rule out either fungus or bacterial
infection as a secondary problem. I had a cold sore come up in the corner of
my mouth on Saturday. She put me on 600 mg. of Omnicef. She mentioned wanting
to start me on Dapsone in three weeks plus the prednisone. I'm not sure the
prednisone is a great idea since my immune system is so surpressed
currently.
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