I was diagnosed with CML 4 1/2 yrs ago. I was Interferon for 12mths & started getting pain off & on which ended up so bad I was approved for Gleevec. My pain improved for a while then it started to get worse & worse. I ended up on morpheine & I still couldn't control the pain. My doctor has taken me off of Gleevec to see if my pain is due to the drugs. My pain has improved but I still take 8 codeine a day. The pain is hard to describe. It feels like it starts in my rib bones & as it gets worse it spreads through my whole body & will spread out to my skin so that it is so sensitive it is painful. My pain is not in my muscles or joints. I am also very limited in my activities. I am unable to drive very far, vacuum, iron etc. Even being on the internet brings on exhaustion & pain. I am wondering if anyone else has similar side effects.
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