I have been off of Gleevec for 7 weeks & I still feel like I am taking it. (400mg). I had alot of pain while on Gleevec & although the pain is a bit better it is still quite severe. Gleevec also gave me a rash on the tops of my arms which is still just as bad as it always was. I am still exhausted & the last few nights had nausea after my tea. My Q-PCR levels are rising so my Leukaemia is not being controlled but I still feel the symptons of Gleevec. I went off Gleevec to see if the pain was perhaps due to some other cause but I am not sure as I still have the rash etc. I start Sprycel (dasatinib) in 2 weeks so I will see how I feel then. Personally I do not think you can take such a strong drug for in my case (3 1/2 years) & have it out of your system in less than a week. I also suffered from pain on Interferon. Unfortunatley I think I am one of those patients that is suseptable to side effects.
Lisa Adelaide, Australia >From: DAWN RODEGHIER <[EMAIL PROTECTED]> >Reply-To: [email protected] >To: [email protected] >Subject: [CMLHope] Re: Gleevec is out of your system in four >days????????????????? >Date: Sun, 20 Aug 2006 15:33:36 -0700 (PDT) > >I was taken off of Gleevec for 10 days on two separate occasions when they >were trying to draw stem cells from me when I first got into remission. >They told me at that time people have been off of it for much longer times >than that and it was still present in their system. Jim Rodeghier > > >educatorsusan <[EMAIL PROTECTED]> wrote: > >To the person who said that Gleevec is out of your system in 4 days: > >I can only tell you out of experience that this statement is >so-o-o-o-o-o totally untrue! 4 days????? NOT! > >I was taken off Gleevec for four days JUST to see if the symptoms from >the initital dose would reduce in problematic issues...by the fourth >day, my white cell counts still dropped tremendously! > >Gleevec reacts to some people like a chemo drug! In my case, it >definitely did! > >For me to drop from 600mg then to 400 mg then to 300 mg...each step was >taken like a kitten walking tenderly down the path! Dr. Druker and >myself did not see any relief between the 600 to 400 mg until 6 months. >The same was from the 400 dose to the 300 dose... > >I guess it boils down to who is taking the Gleevec! > >Hugs, >Susan Rosenthal >Miami, Florida > >PCRU since October 2004 > > > > > > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
