Cheryl-Anne If I knew then what I know now I can honestly say I'm not sure we would have made the same decision. The transplant route is a double edged sword. Adam is about 1.5 yrs post MUD BMT. He still has good weeks and bad and I'll agree with your daughter that self esteem is a huge issue. Due to steroids his weight ballooned and now he hides under big clothes. He still has no hair and gets very annoyed if someone asks him to remove his hat. He's accepted the fact he can't wear one in school. He still takes, on average, 18 pills a day. I read stories of other children who are either on Gleevec or have moved on to newer drugs and I wonder what if. I also read or know of some who have absolutely no difficulties post transplant. Whose to know. Only God can see our future. Anyway, that's my two cents worth.
Suzanne V. Adam's mom dx'd CML feb/04 MUD BMT feb/05 www.caringbridge.org/canada/adam --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
