[CMLHope] Couple of comments on posts

[Ora]

My husband's Oncologist gives us paperwork for his blood work at the time of a visit - but we save it and have the blood work done 7-10 days before his appointments.  We changed that when we changed doctors and it works great to have the latest and greatest blood work to talk about at our visits.  In fact, the last straw with the previous Oncologist was when he refused to order blood work so we could talk about current information at the time of the appointment.

 

He also has had blurred vision problems since starting on the Gleevec, but it seems to come and go - so glasses aren't really the answer for him - but he has reverted to using reading glasses a lot - but that could be an age thing - cause I use them A LOT too - and I am not on Gleevec.

 

Ear/bronchial infections I know well from years of fighting it and now I have permanent hearing loss in one ear from it.  Augmenten never did it for me.  When I let an ear or bronchial infection get bad, it takes several rounds of antibiotic and/or steroids to get it under control.  Over the years, I have learned that if I start taking an expectorant at the first signs of my ear filling up with liquid, I can avoid a doctor all together.  For a couple of years my family doctor gave me an open ended prescription for as needed.  Then when the script ran out I found the expectorant is normally found in some cough syrups, but just recently in the last few years they have come out with an OTC expectorant in pill form that does not have the extra medication to treat a cough.  Kirkland (Costco brand) has it and it is called Mucus Relief - the name brand stuff is expensive and I don't remember the name.  Might check with your doctor to make sure it doesn't affect the Gleevec or other medications, but it is a wonderful answer for me.  I do know I can throw off sickness a lot easier than Scott can.  My understanding is that his immune system isn't as strong as someone without CML, but I don't know how I got this understanding.  We are just germ careful and get the flu shot every year.

 

Ora

wife of Scott

diagnosed 06/00, Gleevec 06/01, off Gleevec 10/06 due to CHF 

 

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