[CMLHope] Re: Couple of comments on posts

[katybug45]

When I went to the Dr. Today he took me off of Augmentin and put me on ear 
drops called Ciprodex. He also told me the stuff in my mouth, (I think I 
mentioned it) blisters and my tongue feels like I am chewing on shards of glass 
when I eat, is Lichen Planus, great! Another "chronic" disease!!!! (she says 
sneakin up behind "K" to steal her crown, so she can become queen!lol) Two 
years ago and a year after being dx'ed my onc. treated me for what he said was 
a yeast infection in my mouth, at that time I had noticed the the skin on the 
inside of my cheeks had a white lacy look to them with "striations" or 
horizontal little lines, that is apparently when it began. You CAN get a yeast 
infection along with this but apparently that would be bad because it can turn 
into a candida albicans super infection. WHATEVER all that means, I just know 
my ear still hurts and is deaf, my tongue and gums hurt, my head hurts and in 
general I just feel bad. 
Droopy Hugs,
Katy
p.s... Ora I havent  had an ear infection since 1969! And it doesnt feel like 
there is any fluid in my ear. It just feels like pressure and like I have an 
ear plug in everything is muffled except for this little high pitched noise 
that has been making me insane for ten days!!!!

--
"The innocent and the beautiful have no enemy but time."
-William Butler Yeats

Katy
DX: 10/03 
#677 in Zero Club


xanga.com/katybug45

 -------------- Original message ----------------------
From: Ora <[EMAIL PROTECTED]>
> My husband's Oncologist gives us paperwork for his blood work at the time of 
> a 
> visit - but we save it and have the blood work done 7-10 days before his 
> appointments.  We changed that when we changed doctors and it works great to 
> have the latest and greatest blood work to talk about at our visits.  In 
> fact, 
> the last straw with the previous Oncologist was when he refused to order 
> blood 
> work so we could talk about current information at the time of the 
> appointment.
>    
>   He also has had blurred vision problems since starting on the Gleevec, but 
> it 
> seems to come and go - so glasses aren't really the answer for him - but he 
> has 
> reverted to using reading glasses a lot - but that could be an age thing - 
> cause 
> I use them A LOT too - and I am not on Gleevec.
>    
>   Ear/bronchial infections I know well from years of fighting it and now I 
> have 
> permanent hearing loss in one ear from it.  Augmenten never did it for me.  
> When 
> I let an ear or bronchial infection get bad, it takes several rounds of 
> antibiotic and/or steroids to get it under control.  Over the years, I have 
> learned that if I start taking an expectorant at the first signs of my ear 
> filling up with liquid, I can avoid a doctor all together.  For a couple of 
> years my family doctor gave me an open ended prescription for as needed.  
> Then 
> when the script ran out I found the expectorant is normally found in some 
> cough 
> syrups, but just recently in the last few years they have come out with an 
> OTC 
> expectorant in pill form that does not have the extra medication to treat a 
> cough.  Kirkland (Costco brand) has it and it is called Mucus Relief - the 
> name 
> brand stuff is expensive and I don't remember the name.  Might check with 
> your 
> doctor to make sure it doesn't affect the Gleevec or
>  other medications, but it is a wonderful answer for me.  I do know I can 
> throw 
> off sickness a lot easier than Scott can.  My understanding is that his 
> immune 
> system isn't as strong as someone without CML, but I don't know how I got 
> this 
> understanding.  We are just germ careful and get the flu shot every year.
>    
>   Ora
>   wife of Scott
>   diagnosed 06/00, Gleevec 06/01, off Gleevec 10/06 due to CHF 
>      
> 
> 
>  
> ---------------------------------
> Sponsored Link
> 
> Get an Online or Campus degree - Associate's, Bachelor's, or Master's - in 
> less 
> than one year.
> 
> 



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--- Begin Message ---

My husband's Oncologist gives us paperwork for his blood work at the time of a visit - but we save it and have the blood work done 7-10 days before his appointments.  We changed that when we changed doctors and it works great to have the latest and greatest blood work to talk about at our visits.  In fact, the last straw with the previous Oncologist was when he refused to order blood work so we could talk about current information at the time of the appointment.

 

He also has had blurred vision problems since starting on the Gleevec, but it seems to come and go - so glasses aren't really the answer for him - but he has reverted to using reading glasses a lot - but that could be an age thing - cause I use them A LOT too - and I am not on Gleevec.

 

Ear/bronchial infections I know well from years of fighting it and now I have permanent hearing loss in one ear from it.  Augmenten never did it for me.  When I let an ear or bronchial infection get bad, it takes several rounds of antibiotic and/or steroids to get it under control.  Over the years, I have learned that if I start taking an expectorant at the first signs of my ear filling up with liquid, I can avoid a doctor all together.  For a couple of years my family doctor gave me an open ended prescription for as needed.  Then when the script ran out I found the expectorant is normally found in some cough syrups, but just recently in the last few years they have come out with an OTC expectorant in pill form that does not have the extra medication to treat a cough.  Kirkland (Costco brand) has it and it is called Mucus Relief - the name brand stuff is expensive and I don't remember the name.  Might check with your doctor to make sure it doesn't affect the Gleevec or other medications, but it is a wonderful answer for me.  I do know I can throw off sickness a lot easier than Scott can.  My understanding is that his immune system isn't as strong as someone without CML, but I don't know how I got this understanding.  We are just germ careful and get the flu shot every year.

 

Ora

wife of Scott

diagnosed 06/00, Gleevec 06/01, off Gleevec 10/06 due to CHF 

 

---

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