Leg, foot and hand cramps are a continuing problem for me. At first I used calcium and that helped with the leg cramps for a while but the effect did not last. I can't take quinine because I have tinnitus and quinine makes that worse. But a pharmacologist I know suggested I try cilostazol (generic name for Pletal) and it improved things considerably. From time to tim I still get leg cramps but not nearly as often nor as severe as they were; also, they're easier to loosen up either by walking and/or by massage. Ask your onc about trying cilostazol: mine had no objection to it at all and was so interested in the results that she now prescribes it for her other Gleevec patients who can't manage with just calcium. Vivi
On Jun 11, 12:36 am, Barb in AZ <[EMAIL PROTECTED]> wrote: > Hello All, > I went to pick up my prescriptions yesterday at the pharmacy and one > of them was quinine for muscle cramps. There was a note from my > pharmacist that said it was the last time he would fill the script > because the FDA is taking it off the market for leg cramps, citing > severe side effects. I went to the FDA site and found the details. > Any of you out there taking it? CHeck out the site: > > http://www.fda.gov/bbs/topics/NEWS/2006/NEW01521.html > > I see my hematologist/oncoloist tomorrow so I am anxious to see what > he prescibes for it now. I can't live with out something. Even on > quinine, I still suffer trememdously with cramping. I am finding > out something about good living and its impact on my side effects. > My husband and I went on weight watchers (I am a life time member > and know the program by heart) and began working out at the gym. He > has lost 35 pounds and I have lost 10 ( he has been on it 8 weeks > longer than I) and I will say, my brain fog, my coordination and my > memory is much improved. I do note that I am not as coordinated on > the treadmill as I used to be. I credit that to the joint effusion > because my hips and knees don't work like they should, but in all, > it has been a good thing since school break. I am sore with the > resistance training but it really does feel good. I am going for a > loss of 25 pounds before Christmas. Wish me luck! > > Blessings to all~ > BARB IN AZ --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
