That's interesting. I'm so sorry about the chills! I see Dr. Cortes at MDACC and there was some talk about putting me on SKI 606 a few months ago. The word out of MDACC is that there are fewer side effects from SKI 606, but not everyone will react the same.
All best, Kristin On Nov 7, 4:21 am, zippimom <[EMAIL PROTECTED]> wrote: > I'm not on Gleevec but SKI-606. I'm frozen! anything under 80 degrees > and I have my hoodie on. My electric bill has went down $50 a month > because I don't have the air condition as low as I use too. I don't > know enough people on the SKI-606 trial to know if it is the SKI-606 > or just me. > > . > > On Nov 6, 11:35 am, kristin <[EMAIL PROTECTED]> wrote: > > > Hi Lee, > > > I have been on Gleevec since April 2001 and I have consistent problems > > with cold fingers and toes. At first, it seemed to go through all of > > my long bones as well, but that improved over time. My counts have > > been consistently in the low normal or slightly low range. The > > coldness is worsened in the winter. But I live in S. California, so > > most of the time it's fairly warm. It may be CML, but I think it's > > probably a Gleevec side-effect. Just my opinion. > > > All best, > > Kristin > > > On Oct 31, 6:57 pm, Lee <[EMAIL PROTECTED]> wrote: > > > > Hi, everyone. > > > My husband has CML, and has been on Gleevec for 2 months now. He > > > is cold all the time! His hands and fingers ( extremities) are always > > > cold. (We live in South Florida where the temperature is around 80 > > > degrees or higher!) We are not sure if this is due to the Gleevec or > > > the fact that he is slightly anemic. We are curious to know if anyone > > > else has experienced this. Thank you for your help and for being a > > > wonderful source of information! > > > Wishing you all the best. > > > > Lee- Hide quoted text - > > > - Show quoted text - --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
