Dear all,

I've been in a group silently for quite a while and so impressed by the
support everyone give to each other, all useful information and
encouragement. I'm waiting to see some info from parents who has CML kids,
but I didn't see one.

My son, Arm, has been diagnosed CML since April 2006 and we have been
searching worldwide for the right donor by the help of our doctor and by
ourselves since then, unfortunately, we have no luck at all (he has no
sibling). He been treated with Glivec from the first day till present and it
works well with him, we can control the cancer at a very satisfied level.
However, as everyone knows, we don't know how long it's gonna work.

I'm so confused and don't know what to do now. I'm thinking about having
another child in hopeing that the new child will have HLA matched with
her/her brother, but the doctor said there's only 25% chance that it will be
a 'perfect' match. I'm thinking about just keeping my son under Glivec
till it's no longer work, then try a new medicine, then...I don't know how
long can I prolong his life. I'm so confused, and I don't know where to turn
to. I talked to my husband and we don't have any answer for it, and I don't
want to bring this up too often as I don't want to bring down his spirit and
moral.

Appreciate your kind advice.

Best wishes to all,
Pat

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