Dear Pat, Many children with CML do well on Glivec. Is Arm doing well on Glivec? Has he been tested by PCR and what is the reading? There are CML children whose parents post on this list who are doing well on Glivec and Sprycel.
If there is no full donor match, transplant risks are increased. You and your husband could always consult a CML specialist to have your minds set at rest. My husband has been on Glivec for 6 years now and we look forward to a normal life. However, my husband is 46 years old and I can appreciate your concerns since your son is only 11 years old and you want to do the best for him. Let us know where you are based and we can give names of CML specialists in your region. Consulting for more than one medical opinion may help set your mind at rest. All the best, Anjana caregiver to Roy d/x Jan 2002 400mg Glivec On Jan 4, 4:51 pm, "Parichart N." <[EMAIL PROTECTED]> wrote: > Dear all, > > I've been in a group silently for quite a while and so impressed by the > support everyone give to each other, all useful information and > encouragement. I'm waiting to see some info from parents who has CML kids, > but I didn't see one. > > My son, Arm, has been diagnosed CML since April 2006 and we have been > searching worldwide for the right donor by the help of our doctor and by > ourselves since then, unfortunately, we have no luck at all (he has no > sibling). He been treated with Glivec from the first day till present and it > works well with him, we can control the cancer at a very satisfied level. > However, as everyone knows, we don't know how long it's gonna work. > > I'm so confused and don't know what to do now. I'm thinking about having > another child in hopeing that the new child will have HLA matched with > her/her brother, but the doctor said there's only 25% chance that it will be > a 'perfect' match. I'm thinking about just keeping my son under Glivec > till it's no longer work, then try a new medicine, then...I don't know how > long can I prolong his life. I'm so confused, and I don't know where to turn > to. I talked to my husband and we don't have any answer for it, and I don't > want to bring this up too often as I don't want to bring down his spirit and > moral. > > Appreciate your kind advice. > > Best wishes to all, > Pat --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
