Hi Kelly and welcome to the CML WARRIOR club.
We are all fighting this CML with everything we can muster.
I was feeling just like you when I was first dx 4 years ago; weak, tired  and 
just wiped out.
I had chills and fever and most days, just lay on the couch.
The side effects will get better, or maybe we just learn to live with them;  
but we are hanging in there and I want to encourage you to keep up with this  
group as there are some very knowledgeable WARRIORS on this list ,and they 
will  help you get through this.
How much Gleevec are you taking daily?
Blessings,
Jeanie<3
 
In a message dated 2/21/2008 9:59:25 P.M. Pacific Standard Time,  
[EMAIL PROTECTED] writes:

I went  to the ER in October for chest pain. They found an elevated
white count.  After several bumblings with my PCP, I was referred to an
heme/onc  specialist. Bloodwork Nov 14. Bone marrow bx Dec 14.
Treatment started Feb  8 - with Gleevec. Okay, I feel terrible. My
eyelids are swollen as well as  my hands, feet, legs, everything! I am
so tired and I hurt all over. Is  this normal? Do these symptoms start
to dissipate? I must mention that my  abnormal white count was detected
at the same time I was living with my  parents helping care for my
father with pancreatic Ca. My father died Nov  27. I was told there is
no connection whatsoever to the pancreatic Ca and  the CML. Prior to my
parent's generation - there was absolutely no evidence  of cancer in my
family. Two uncles on maternal side with colon Ca (both  uncles are in
their 80s and faring reasonably well having beat the Ca) and  then my
father.

As of last Friday - I went to a psychiatrist as I  was having trouble
functioning emotionally (anxiety/depression). I can only  attribute
this to a delayed response to what I have been through the last  few
months.

I have a very demanding, stressful job. When I finish  work, I have
nothing left. I am completely wiped out. The psychiatrist put  me on 8
weeks of medical leave. My disability insurance WILL NOT keep  the
wolves from the door. But, I refuse to worry about it. My employer  has
already called me and "threatened" my job.

My question - with a  diagnosis of CML - can you qualify for SSD
(social security disability)? I  already feel as though my quality of
life is crap as I can't even go to the  grocery store without being
totally wiped out.

Can anyone offer some  advice, facts, reference sites? I would greatly
appreciate  it.







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