Hi Livia and so sorry for your problems. I had a similar reaction when I started Gleevec. I had chills and fevers and thought I was dying. It soon went away; so hang in there if possible. Blessings, Jeanie<3 In a message dated 3/23/2008 1:42:12 P.M. Pacific Daylight Time, [EMAIL PROTECTED] writes:
good afternoon everybody, first aof all i would like to thank everybody for their response to my email regarding the interferon. i started a trial this saturday, so in addition to my 600 mg of gleevec, am also adding .3 cc of interferon and 250 mcg of leukine 'sargamostim' wtih saline. it was my first time yesterday and i must say that i had a horrible reaction. it was kind of emotional for me to inject myself, but i did it. my husband laughed that there are so many people who take insuling and they do not cry like me... i really cried like a baby, but the reason was not that it will hurt me a little bit, but the whole concept of having cml, being so far from the family and just realizeing how sick i am. interferon injection hurt me a little bit, maybe because i was doing it very slow. leukine with saline was perfect. i did not feel anything. but now my experience from this night. approximately two hors after the injections i started to shake like crazy. my teeth were making a noise and i had to wake up my husband. he brough me two blankets and a coat, but nothing was helping. my whole body hurt so much and my fever was 103.5. i guess it is was a reaction to the interferon, but it was realy horrible. i really hope that it was just the first reaction. i hope it will go away, because i have to work. today i am spending all day in the bed. i will call my nurse to tell her about my side effects to see if it happens to the patients just the first time they take interferon, or if it is a high dose for me or what... i am not sure but i can tell that i have suffered this night. oh well. i started it, so i can not give up so easily. i can switch to the vaccine trial, but it was only the first shot... oh well. i hope it will go better. thanks for listening to me. livia **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030000000001) --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
