Gosh my Birthday is in May as well the 30th..Happy B'day to us May babies now that I have a note going Zavie suggested I tell you all what is going on with me... As of today I started Dasatinib.. at 100mg a day. My doctor said (holding his Hand at approx the 6ft level) when I first met you your cml was at this level, now after Gleevec and nilotinib your at this level (holding his hand approx 18 inches from the floor. But he said I cannot increase your dose of Nilotinib as it attacks your pancreas, so I am switching you to Dasatinib. If this does not work, I can always switch you back to nilotinib at 400mg a day. My doctor want to see if he can get my leukemia down lower. I had a BMA & B done last week heart monitor etc.. I will need blood samples with all kinds of different blood samples for at least 6 weeks. My Doctor's hope is that I could reduce the amout of Platelet and Hgb that I receive every week. So anyone that is now on either Gleevec, or Nilotinib take heart Dasatinib is or could be the winner if not well always can go back when it is approved in Canada, now if my doctor could have increased the dose to 600mg a day he may have stayed with nilotinib but the company have strict rules governing their drugs on trial. So for now I am as of today on Dasatinib at 100 mg a day (expensive little bugger too, thank God for my insurance) One of my Doctors said they were using me as a test case for people who have survived long time CML (not sure how many years he means as long term survivor LOL) Be safe all and be kind to each other. SkipD Dx 30++++ years ago
--- [EMAIL PROTECTED] wrote: > > In a message dated 5/9/2008 9:24:40 A.M. Eastern > Daylight Time, I CAN DO ALL > TTC writes: > > Hi Zavie and yes my birthday is in May. > I'll be 70; it has been a wonderful 70 years. > We are going to celebrate with a big dinner with all > the family. > I was doing so good and then all of a sudden my > blood went haywire. > I'm a warrior and I'm hanging in there. > I'll be getting a PCR soon, and I'll let you know > what happens. > Blessings, > Jeanie<3 > > > > > > > > **************Wondering what's for Dinner Tonight? > Get new twists on family > favorites at AOL Food. > (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) > > > > ____________________________________________________________________________________ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
