HAPPY BIRTHDAY ALL YOU MAY BABIES.
    Good luck with your new meds Skip.
Blessings,
Jeanie<3
In a message dated 5/9/2008 1:26:13 P.M. Eastern Daylight Time,  
[EMAIL PROTECTED] writes:

Gosh my  Birthday is in May as well the 30th..Happy
B'day to us May babies
now  that I have a note going Zavie suggested I tell
you all what is going on  with me... As of today I
started Dasatinib.. at 100mg a day.  My  doctor said
(holding his Hand at approx the 6ft level) when I
first met  you your cml was at this level, now after
Gleevec and nilotinib your at  this level (holding his
hand approx 18 inches from the floor.  But he  said I
cannot increase your dose of Nilotinib as it attacks
your  pancreas, so I am switching you to Dasatinib.  If
this does not work,  I can always switch you back to
nilotinib at 400mg a day.  My doctor  want to  see if
he can get my leukemia down lower.  I had a BMA  & B
done last week heart monitor etc.. I will need 
blood samples  with all kinds of different blood
samples for at least 6 weeks.  My  Doctor's hope is
that I could reduce the amout of Platelet and Hgb  that
I receive every week.  So anyone that is now on  either
Gleevec, or Nilotinib take heart Dasatinib is 
or could be the  winner if not well always can go back
when it is approved in Canada, now if  my doctor could
have increased the dose to 600mg a day he may  have
stayed with nilotinib but the company have strict
rules governing  their drugs on trial.  So for now I am
as of today on  Dasatinib  at 100 mg a day (expensive
little bugger too, thank God for my insurance)  One of
my Doctors said they were using me as a test case for
people who  have survived long time CML (not sure how
many years he means as long term  survivor LOL) Be safe
all and be kind to each other.
SkipD
Dx 30++++  years ago 


 



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