Hi Pat: I would have to agree with Rhonda. My friend had nonHodgkin's lymphoma, large and small cell bone cancer. She had to go the IV chemo route. The pills to keep her nausea at bay were astronomical. Someone gave her some marijuana (and I am not advocating doing anything illegal) and she, still to this day - 10 years in remission - swears by it. I must mention she is also a nurse. It completely eliminated her nausea and increased her appetite. She did exceptionally well, and like I said, she is 10 years in remission. I would definitely approach your physician for the marinol - you have nothing to lose.
Take care, Kelly On May 30, 6:01 pm, "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: > Hello to my CML Family, I'm disappointed that there is so little > activity in the group but I am just as much to blame as any of the > rest of it. We need to not stray from the group because we are doing > good. There are new members who need us just as we once needed each > other. > I want to address to the group, that after 4 years of basically > holding my own on my PCR numbers, which I've never reached zero, my > numbers are climbing back up. It is not that the Gleevec is not > working, it is that I have lost my appetite completely, and I am > barely able to eat much of anything and when I don't eat a good > amount, I am not able to keep the Gleevec down. If you've never > vomited up Gleevec, then you don't know what it is like but I can tell > you, it is an awful experience. You cannot get the taste out of your > mouth and it burns. So now on days when I cannot force any food down, > I just don't take it or take maybe 200mg. > I have explained to my CML specialist at Vandy that is my only problem > with the Gleevec is lack of appetite and literally begged for > something to enhance my appetite which he has not done. He wants to > change my meds to Sprycel which I am going to be unable to do as it > causes fluid retention around the lungs/and or heart and I have > emphysema. He then mentioned another med, that I have to have have my > heart checked prior to taking it, which may be an issue as I have > hardening of the arteries. I was scheduled to see a heart specialist > at Vandy today for a EKG which is not going to detect my problem. So I > am going to get with my primary doctor and see if I can get him to get > me in locally with a heart specialist. > Anyway, my primary doctor gave me a med called peractin that is > supposed to increase my appetite. I looked this up and the side > effects are a mile long...longer than the Gleevec actually. I was so > excited and now I am terrified to even try it. I am to take it at > bedtime and the first side effect is allergic reaction which is > fatal. > Is anyone familiar with this medication? Or does anyone know of > anything else that can be taken to increase appetite??? I was holding > my own for the past 2 yrs. at 140lbs. I now weigh 124lbs. I am > terrified that my numbers are rising...and starting to panic. Any info > would be greatly appreciated. > Love, Peace, Hope & Prayers, Pat (the TN turtle) --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
